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Can Geriatr J. 2019 Mar 30;22(1):23-33. doi: 10.5770/cgj.22.336. eCollection 2019 Mar.

The Canadian Frailty Priority Setting Partnership: Research Priorities for Older Adults Living with Frailty.

Bethell J1, Puts MTE2, Sattar S2, Andrew MK3, Choate AS1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17, Clarke B4, Cowan K2, DeAngelis C6, Elliott J7, Fitch MI2,8, Frank C9,10, Hominick K11, Keatings M1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17, McElhaney JE12,13, McKay SM14,15, Pitters E1,2,3,4,5,6,7,8,9,10,11,12,13,14,15,16,17, Ploeg J16, Sidani S17, McGilton KS1,2.

Author information

1
Toronto Rehabilitation Institute, University Health Network, Toronto, ON.
2
Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, ON.
3
Department of Medicine (Geriatrics), Dalhousie University, Halifax, NS.
4
Department of Family Medicine, Dalhousie University, Halifax, NS.
5
James Lind Alliance, Southampton, UK.
6
Sunnybrook Health Sciences Centre, Toronto, ON.
7
School of Public Health and Health Systems, University of Waterloo, Waterloo, ON.
8
Canadian Partnership Against Cancer, Toronto, ON.
9
Department of Medicine, Queen's University, Kingston, ON.
10
Providence Care, Kingston, ON.
11
Seniors' Health, Nova Scotia Health Authority, Halifax, NS.
12
Health Sciences North Research Institute, Sudbury, ON.
13
Northern Ontario School of Medicine, Laurentian University, Sudbury, ON.
14
VHA Home HealthCare, Toronto, ON.
15
Department of Physical Therapy, University of Toronto, Toronto, ON.
16
School of Nursing, and Aging, Community and Health Research Unit, McMaster University, Hamilton, ON.
17
Ryerson University, Toronto, ON.

Abstract

Background:

Patient engagement in research priority-setting is intended to democratize research and increase impact. The objectives of the Canadian Frailty Priority Setting Partnership (PSP) were to engage people with lived or clinical experience of frailty, and produce a list of research priorities related to care, support, and treatment of older adults living with frailty.

Methods:

The Canadian Frailty PSP was supported by the Canadian Frailty Network, coordinated by researchers in Toronto, Ontario and followed the methods of the James Lind Alliance, which included establishing a Steering Group, inviting partner organizations, gathering questions related to care, support and treatment of older adults living with frailty, processing the data and prioritizing the questions.

Results:

In the initial survey, 799 submissions were provided by 389 individuals and groups. The 647 questions that were within scope were categorized, merged, and summarized, then checked against research evidence, creating a list of 41 unanswered questions. Prioritization took place in two stages: first, 146 individuals and groups participated in survey and their responses short-listed 22 questions; and second, an in-person workshop was held on September 26, 2017 in Toronto, Ontario where these 22 questions were discussed and ranked.

Conclusion:

Researchers and research funders can use these results to inform their agendas for research on frailty. Strategies are needed for involving those with lived experience of frailty in research.

KEYWORDS:

frailty; patient and public involvement; patient engagement; research; research priorities

Conflict of interest statement

CONFLICT OF INTEREST DISCLOSURES The authors declare that no conflicts of interest exist.

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