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J Palliat Med. 2019 Sep;22(9):1149-1153. doi: 10.1089/jpm.2019.0378.

Top Ten Tips Palliative Care Clinicians Should Know About Caring for Children in Neonatal and Pediatric Intensive Care Units.

Author information

1
Division of Pediatric Critical Care Medicine, Department of Pediatrics, Duke Children's Hospital, Durham, North Carolina.
2
Duke Cancer Institute, Duke University School of Medicine, Durham, North Carolina.
3
Division of Critical Care Medicine, Department of Pediatrics, Nemours/A.I. duPont Hospital for Children, Wilmington, Delaware.
4
Division of Palliative Medicine, Department of Pediatrics, Nemours/A.I. duPont Hospital for Children, Wilmington, Delaware.

Abstract

Over the past several years, pediatric critical care units increasingly count on the expert advisement of palliative care specialists. Given the limited availability of pediatric palliative care specialists, all palliative care clinicians may be required to care for pediatric patients and their families. Special considerations in caring for these patients include the relative importance of prognosis, involvement of child life, music and pet therapy, incorporation of parents in end-of-life rituals, care for siblings, use of medical technology, and prolonged duration of stay. The following top 10 tips provide recommendations for caring for seriously ill infants, children, adolescents, and the families of these critically ill pediatric patients. They are written by pediatric intensive care providers to address common issues around palliative care in intensive care units.

KEYWORDS:

alternative therapies; neonatology; pediatric chronic conditions; pediatric communication issues; pediatric pain control; pediatric palliative care

PMID:
31498731
DOI:
10.1089/jpm.2019.0378

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