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J Hand Ther. 2019 Sep 3. pii: S0894-1130(18)30095-4. doi: 10.1016/j.jht.2019.03.013. [Epub ahead of print]

Going beyond Activity and Participation: Development of the DIF-CHUM-A patient-reported outcome measure for individuals with Dupuytren's contracture.

Author information

1
Public Health PhD Program, School of Public Health, University of Montreal, Montreal, Quebec, Canada. Electronic address: forget.nancy@outlook.com.
2
School of Rehabilitation, University of Montreal, Montreal, Quebec, Canada; Center for Interdisciplinary Research in Rehabilitation of Greater Montreal (CRIR), Montreal, Quebec, Canada.
3
Department of Social and Preventive Medicine, School of Public Health, University of Montreal, Montreal, Quebec, Canada; Public Health Research Institute, University of Montreal, Montreal, Quebec, Canada.
4
Plastic Surgery Service, Department of Surgery, University of Montreal Hospital Center (CHUM), Montreal, Quebec, Canada.

Abstract

STUDY DESIGN:

This is a cross-sectional clinical measurement.

INTRODUCTION:

There are currently no Dupuytren's contracture (DC)-specific, patient-reported outcomes (PROs) that can provide a thorough clinical portrait of the patients' perceptions with regard to the execution of regular activities.

PURPOSE OF THE STUDY:

The purpose of this study was to present the development of the Dupuytren's contracture Impact on Function-Centre Hospitalier de l'Université de Montréal (DIF-CHUM), a DC-specific PRO.

METHODS:

The development process involved consultation of 45 individuals with DC and 7 health professionals, existing literature, and DC-specific PRO.

RESULTS:

The DIF-CHUM is composed of 2 sections: section 1, Activity and Participation includes 8 items per hand, scored on Difficulty and Change scales; section 2, General Impact includes up to 18 items, scored on Difficulty, Importance, Change and Satisfaction scales. Preliminary evidence suggests that the DIF-CHUM demonstrates good content validity.

DISCUSSION:

The DIF-CHUM is designed to be a patient-centered measure of Activity and Participation and Functional Competence for individuals with DC that will provide hand therapists with a unique perspective of the impact of DC on patients' lives.

CONCLUSION:

Further validation of the DIF-CHUM, including its scoring, is under way.

KEYWORDS:

Activity and participation; Dupuytren’s contracture; Patient-reported outcomes; Validity

PMID:
31492480
DOI:
10.1016/j.jht.2019.03.013

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