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Contemp Clin Trials Commun. 2019 Aug 10;16:100428. doi: 10.1016/j.conctc.2019.100428. eCollection 2019 Dec.

Setting and motivation in the decision to participate: An approach to the engagement of diverse samples in mobile research.

Author information

1
Center for Health Equity, School of Public Health, University of Maryland, College Park, MD, USA.
2
Collaborative Center for Health Equity, University of Wisconsin, Madison, WI, USA.
3
School of Medicine, University of California, San Francisco, CA, USA.

Abstract

Internet and mobile based research are powerful tools in the creation of large, cohort studies (eCohort). However, recent analysis indicates that an underrepresentation of minority and low income groups in these studies might exceed that found in traditional research [1-5]. In this report, we present findings from an experiment in research engagement using the Eureka Research Platform developed to enroll diverse populations in support of biomedical clinical research. This experiment involved the recruitment of African American and Latino participants in a smartphone based survey at a temporary, charitable, dental event sponsored, in part, by the research team, in order to explore the impact of setting and approach on recruitment outcomes. 211 participants enrolled including a significant representation of African Americans (51%) and Latinos (31%) and those with education levels at high school or less (37%). Interviews conducted after the study confirmed that our recruitment efforts within the context of a service event affected the decision to participate. While further research is necessary, this experiment holds promise for the engagement of underrepresented groups in research.

KEYWORDS:

Clinical trials; Community engagement; Minority populations; Recruitment; eCohort studies

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