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J Adolesc Young Adult Oncol. 2019 Aug 14. doi: 10.1089/jayao.2019.0040. [Epub ahead of print]

Documentation of Palliative and End-of-Life Care Process Measures Among Young Adults Who Died of Cancer: A Natural Language Processing Approach.

Author information

1
1Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, Boston, Massachusetts.
2
2Harvard Medical School, Boston, Massachusetts.
3
3Division of Population Sciences, Department of Medical Oncology, Dana-Farber Cancer Institute, Boston, Massachusetts.

Abstract

Few studies have investigated palliative and end-of-life care processes among young adults (YAs), aged 18-34 years, who died of cancer. This retrospective study used a natural language processing algorithm to identify documentation and timing of four process measures in YA cancer decedents' medical records: palliative care involvement, discussions of goals of care, code status, and hospice. Among 2878 YAs, 138 had a recorded date of death. In this group, 54.3% had at least one process measure documented early (31-180 days before death), 18.0% had only late documentation of process measures (0-30 days), and 27.5% had none documented.

KEYWORDS:

hospices; natural language processing; palliative care; retrospective studies

PMID:
31411524
DOI:
10.1089/jayao.2019.0040

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