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Pediatr Surg Int. 2019 Jul 5. doi: 10.1007/s00383-019-04506-0. [Epub ahead of print]

What do pediatric surgeons think about sexual issues in dealing with patients with anorectal malformations? The ARM-Net consortium members' opinion.

Author information

1
Department of Pediatric and Adolescent Surgery, Medical University of Graz, Auenbruggerplatz 34, 8036, Graz, Austria. ee.amerstorfer@gmail.com.
2
Department of Psychology, Sapienza University of Rome, Rome, Italy.
3
Department of Medical Psychology, Radboudumc Nijmegen, Nijmegen, The Netherlands.
4
Department of Pediatric Surgery, University Hospital, 12 de Octubre, Madrid, Spain.
5
Department of Abdominal Surgery, University Hospital Gasthuisberg, KU Leuven, Belgium.
6
German Self-help Organization for Anorectal Malformations SoMA e.V., Munich, Germany.
7
VA-Dutch Patient Organization for Anorectal Malformations, Huizen, The Netherlands.
8
Department of Surgery-Pediatric Surgery, Amalia Children's Hospital-Radboudumc Nijmegen, Nijmegen, The Netherlands.
9
Department of Child and Adolescent Psychiatry, University Medical Center of the Johannes Gutenberg University, Mainz, Germany.
10
Institute of Integrative Medicine, Witten/Herdecke University, Herdecke, Germany.
11
Department of Pediatric Surgery, Emma Children's Hospital, AMC and VU University Medical Center, Amsterdam, The Netherlands.
12
Department for Health Evidence, Radboud Institute for Health Sciences, Radboudumc Nijmegen, Nijmegen, The Netherlands.

Abstract

PURPOSE:

Since pediatric surgeons aim to follow their patients with anorectal malformations (ARM) into adulthood the aim of this study was to investigate how pediatric surgeons deal with sexual issues related to ARM.

METHODS:

In 2018, a questionnaire was developed by the working group "Follow-up and sexuality" of the ARM-Net consortium and sent to all consortium-linked pediatric surgeons from 31 European pediatric surgical centers. Obtained data were statistically analyzed.

RESULTS:

Twenty-eight of 37 pediatric surgeons (18 males/10 females) answered the questionnaire. The majority of pediatric surgeons (82%) think they should talk about sexual issues with their patient. More than 50% of pediatric surgeons do not feel at all or only moderately confident discussing the topic of sexuality. Most pediatric surgeons require more support (96%) and wish to be trained in sexuality and sexual issues (78%) to feel confident towards their ARM-patients/parents. For optimal care, sexual issues with ARM-patients should be managed by a multidisciplinary team.

CONCLUSIONS:

Pediatric surgeons feel that sexuality is an important issue for their ARM-patients, which they are primarily responsible of but should be managed in concert with a multidisciplinary team. A training in sexuality is wished to feel more confident about this specific issue.

KEYWORDS:

ARM-Net; Adolescence; Anorectal malformation; Sexual functioning; Sexuality; Training

PMID:
31278477
DOI:
10.1007/s00383-019-04506-0

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