Format

Send to

Choose Destination
Child Care Health Dev. 2019 Sep;45(5):623-636. doi: 10.1111/cch.12700. Epub 2019 Jul 16.

Parental empowerment in paediatric rehabilitation: Exploring the role of a digital tool to help parents prepare for consultation with a physician.

Author information

1
Center of Excellence for Rehabilitation Medicine, Brain Center Rudolf Magnus, University Medical Center Utrecht and De Hoogstraat Rehabilitation, Utrecht University, Utrecht, The Netherlands.
2
Department of Rehabilitation Medicine, Amsterdam University Medical Centers, location AMC, Meibergdreef 9, Amsterdam, The Netherlands.
3
Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center Rudolf Magnus, University Medical Center Utrecht, Utrecht University, Utrecht, The Netherlands.
4
Department of Education and Pedagogy, Faculty of Social and Behavioural Sciences, Utrecht University, the Netherlands and Department of Neonatology, Wilhelmina Children's hospital, University Medical Center Utrecht, Utrecht, The Netherlands.
5
BOSK Association of persons with congenital physical handicaps, Utrecht, The Netherlands.
6
Department of Paediatric Rehabilitation, Rehabilitation Center Merem, Huizen, The Netherlands.
7
Department of Paediatric Rehabilitation, Rijndam Rehabilitation, Rotterdam, The Netherlands.
8
Research Center Autonomy and Participation, Faculty of Health, Zuyd University of Applied Science, Heerlen, The Netherlands.

Abstract

BACKGROUND:

To explore experiences of parents of children with disabilities using the WWW, roadmap, a tool to support them in exploring needs, finding information, and asking questions of professionals and to explore differences between parents who had used the WWW-roadmap to prepare for consultation with their rehabilitation physician and parents who had not.

METHODS:

In a sequential cohort study, we included 128 parents; 54 used the WWW-roadmap prior to consultation and 74 received care-as-usual. Both groups completed questionnaires after consultation, assessing empowerment, self-efficacy, parent and physician satisfaction, family centredness of care, and experiences using the tool. Additionally, 13 parents were interviewed.

RESULTS:

Parents who used the WWW-roadmap looked up more information on the Internet. No other differences between parents and physicians were found. In the interviews, parents said that the WWW-roadmap was a useful tool for looking up information, exploring and asking questions, and maintaining a comprehensive picture.

CONCLUSION:

Using the WWW-roadmap prior to consultation did not improve self-efficacy, satisfaction, or family centredness of care. Findings suggest positive experiences regarding factors determining empowerment, creating conditions for a more equal parent-physician relationship. The WWW-roadmap is useful for parents to explore their needs and find information, but more is needed to support empowerment in consultations.

KEYWORDS:

consultation; family empowerment; family, centred care; information; paediatric rehabilitation

PMID:
31276605
DOI:
10.1111/cch.12700

Supplemental Content

Full text links

Icon for Wiley
Loading ...
Support Center