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Pediatr Blood Cancer. 2019 Oct;66(10):e27889. doi: 10.1002/pbc.27889. Epub 2019 Jul 5.

A psychosocial clinical care pathway for pediatric hematopoietic stem cell transplantation.

Author information

1
Nemours Center for Healthcare Delivery Science, Wilmington, Delaware.
2
Sidney Kimmel Medical College, Thomas Jefferson University, Philadelphia, Pennsylvania.
3
University of Alabama-Birmingham, Birmingham, Alabama.
4
Children's of Alabama, Birmingham, Alabama.
5
Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio.
6
The University of Cincinnati College of Medicine, Cincinnati, Ohio.
7
University of Pennsylvania School of Nursing, Philadelphia, Pennsylvania.

Abstract

OBJECTIVE:

Currently, no evidence-based psychosocial clinical care pathways (PCCP) exist to triage psychosocial risk levels and guide delivery of psychosocial care to youth receiving a hematopoietic stem cell transplantation (HCT) and their families. The purpose of this paper is to describe the use of qualitative research methodologies to develop PCCP in pediatric HCT consistent with the Standards for Psychosocial Care developed for children with cancer.

METHODS:

We previously used qualitative methodologies to interview parents to identify four principles to inform the development of PCCPs. Then in this study a focus group with parents and multidisciplinary clinicians was conducted to assess the acceptability of the PCCP, suggest modifications, and provide input on its use.

RESULTS:

The PCCP is six-step pathway, starting with a standardized screening assessment with the Psychosocial Assessment Tool (PAT-HCT) that identifies the family's specific care needs. The focus group data support overall assessment with the PAT-HCT and the care principles underlying this approach.

CONCLUSIONS:

This PCCP is a systemic multidisciplinary model for providing psychosocial care that is ready for the next stage of development and evaluation in clinical care.

KEYWORDS:

cancer; psychosocial; support care; transplantation

PMID:
31276304
DOI:
10.1002/pbc.27889

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