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Eur J Cancer. 2019 Jun;114:47-54. doi: 10.1016/j.ejca.2019.03.003. Epub 2019 May 3.

Recommendations for the organisation of care in paediatric radiation oncology across Europe: a SIOPE-ESTRO-PROS-CCI-Europe collaborative project in the framework of the JARC.

Author information

1
Department of Radiation Oncology, University Medical Centre Utrecht, the Netherlands; Princess Maxima Centre for Paediatric Oncology, Utrecht, the Netherlands. Electronic address: g.o.r.janssens@umcutrecht.nl.
2
Department of Particle Therapy, University Hospital Essen, West German Proton Therapy Centre Essen (WPE), West German Cancer Centre (WTZ), German Cancer Consortium (DKTK), Germany.
3
Department of Radiation Oncology, Institut Claudius Regaud, Institut Universitaire du Cancer de Toulouse-Oncopole, Toulouse, France; Toulouse NeuroImaging Center, ToNIC, INSERM Université Toulouse III Paul Sabatier, Toulouse, France.
4
Department of Radiotherapy, The Royal Marsden Hospital, Sutton, United Kingdom.
5
Department of Radiation Oncology, CRCM, UMR 1068 Inserm 7258 CNRS, Assistance Publique Hôpitaux de Marseille, Marseille, France.
6
Department of Radiation Oncology, Gustave Roussy, Villejuif, France.
7
INSERM Unit 1018, Centre for Research in Epidemiology and Population Health (CESP), Cancer and Radiations Group, Gustave Roussy, Villejuif, France.
8
Childhood Cancer International - Europe, Vienna, Austria.
9
European Society for Paediatric Oncology (SIOP Europe), Brussels, Belgium.
10
European Society for Radiotherapy & Oncology (ESTRO), Brussels, Belgium.
11
European Society for Paediatric Oncology (SIOP Europe), Brussels, Belgium; European Society for Radiotherapy & Oncology (ESTRO), Brussels, Belgium; Institute of Cancer and Genomic Sciences, NIHR Birmingham Biomedical Research Centre, University of Birmingham, Birmingham, United Kingdom.
12
Department of Radiation Oncology, Ghent University Hospital, Ghent, Belgium.
13
European Society for Radiotherapy & Oncology (ESTRO), Brussels, Belgium; Institute of Cancer and Genomic Sciences, NIHR Birmingham Biomedical Research Centre, University of Birmingham, Birmingham, United Kingdom; Department of Radiation Oncology, Ghent University Hospital, Ghent, Belgium.
14
European Society for Paediatric Oncology (SIOP Europe), Brussels, Belgium; Department of Clinical Research, Gustave Roussy, Paris-Sud University, Paris, France.

Abstract

Disparities in survival and long-term side-effects from paediatric cancer are observed across European Society for Paediatric Oncology (SIOPE)-affiliated countries. The Joint Action on Rare Cancers (JARC) is a project supported by the European Union and member states aiming to formulate recommendations on rare cancers, including paediatric malignancies, to reduce inequalities and to improve health outcomes. Most paediatric cancers are treated by a combination of systemic agents, surgery and/or radiotherapy. Radiotherapy for children is becoming increasingly complex because of the growing availability of new modalities and techniques and the evolution in molecular biology. These added challenges have the potential to enhance disparities in survival and side-effects between countries, but also among centres in the same country. To tackle radiotherapy-related inequalities, representatives of SIOPE, European SocieTy for Radiotherapy and Oncology, Paediatric Radiation Oncology Society and Childhood Cancer International-Europe defined 'standard' and 'optional' levels to deliver Good Clinical Practice-compliant treatment in paediatric radiation oncology with a focus on patient-related care, education and training. In addition, more than 250 paediatric radiotherapy centres across the SIOPE-affiliated countries have been mapped. For a better understanding of resources in paediatric radiotherapy, JARC representatives are working on an online survey for paediatric radiation oncologists of each centre in SIOPE-affiliated countries. The outcome of this survey will give an insight into the strengths and weaknesses of paediatric radiotherapy across SIOPE-affiliated countries and can be relevant for European Reference Networks in terms of collaboration pathways and referrals in paediatric radiotherapy.

KEYWORDS:

Childhood cancer; Paediatric; Paediatric oncology; Radiation oncology; Radiotherapy; Recommendations; SIOPE; Standards of care

PMID:
31059973
DOI:
10.1016/j.ejca.2019.03.003
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