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Acta Paediatr. 2019 Apr 21. doi: 10.1111/apa.14823. [Epub ahead of print]

The Swedish Neonatal Quality Register - contents, completeness and validity.

Author information

1
Department of Clinical Science, Intervention and Technology, Division of Pediatrics, Karolinska Institutet, Stockholm, Sweden.
2
Department of Neonatal Medicine, Karolinska University Hospital, Stockholm, Sweden.
3
Swedish Neonatal Quality Register (SNQ), Västerbotten county council, Umeå, Sweden.
4
Centre for Reproductive Epidemiology, Lund University, Lund, Sweden.
5
National Board of Health and Welfare, Stockholm, Sweden.
6
Department of Clinical Sciences, Division of Pediatrics, Umeå University, Umeå, Sweden.

Abstract

AIM:

To describe the Swedish Neonatal Quality Register (SNQ) and to determine its completeness and agreement with other registers.

METHODS:

SNQ collects data for infants admitted to neonatal units during the first four postnatal weeks. Completeness and registers' agreement were determined cross-linking SNQ data with Swedish population registers (the Inpatient, Medical Birth and Cause of Death Registers) for a study period of five years.

RESULTS:

In total, 84 712 infants were hospitalised. A total of 52 806 infants occurred in both SNQ and the population registers; 28 692 were only found in the population registers, and 3214 infants were only found in SNQ. Between gestational weeks 24-34, completeness of SNQ was 98-99%. Below and above these gestational ages, completeness was lower. Infants missing in SNQ were term or near-term in 99% of the cases, and their diagnoses indicated conditions managed in maternity units, or re-admissions for acute infections, managed in paediatric units. For most diagnoses, the agreement between SNQ and population registers was high, but some (bronchopulmonary dysplasia and grade of hypoxic-ischaemic encephalopathy) were often missing in the population registers.

CONCLUSION:

SNQ completeness and agreement against other registers, especially for preterm infants, is excellent. SNQ is a valid tool for benchmarking, quality improvement and research.

KEYWORDS:

Completeness; Newborn infant; Quality of neonatal care; Register; Validation

PMID:
31006126
DOI:
10.1111/apa.14823

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