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Front Med (Lausanne). 2019 Mar 22;6:51. doi: 10.3389/fmed.2019.00051. eCollection 2019.

Mini Review on the Use of Clinical Cancer Registers for Prostate Cancer: The National Prostate Cancer Register (NPCR) of Sweden.

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Division of Experimental Oncology/Unit of Urology, URI, IRCCS Ospedale San Raffaele, Milan, Italy.
University Vita-Salute San Raffaele, Milan, Italy.
Department of Urology, Ryhov Hospital, Jonköping, Sweden.
Institute of Clinical Sciences, Department of Oncology, Sahlgrenska Academy, University of Göteborg, Göteborg, Sweden.
Division of Urology, Karolinska University Hospital, Stockholm, Sweden.
Department of Molecular Medicine and Surgery (MMK), Karolinska Institutet, Stockholm, Sweden.
Department of Surgical and Perioperative Sciences, Urology and Andrology, Umeå University, Umeå, Sweden.
Department of Surgical Sciences, Uppsala University, Uppsala, Sweden.


Given the increasing prevalence of cancer, it is vital to systematically collect data in order to monitor disease trends and quality of cancer care. For this purpose, clinical cancer registries have been developed in some countries. These registers are intended to be used as a basis for quality assurance and quality improvement, but they also constitute a rich resource of real world data for research. The aim of this mini-review was to describe the structure and the organization of the National Prostate Cancer Register (NPCR) with some examples on how data in NPCR have affected prostate cancer care in Sweden.


National Prostate Cancer Register (NPCR) of Sweden; Prostate Cancer data Base Sweden (PCBaSe); clinical cancer register; online registration; prostate cancer; report

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