Prospect Theory Concepts Applied to Family Members of Nursing Home Residents with Cancer: A Good Ending Is a Gain

J Soc Work End Life Palliat Care. 2019 Jan-Mar;15(1):34-54. doi: 10.1080/15524256.2019.1580242. Epub 2019 Mar 20.

Abstract

Family members are often involved in medical decision-making on behalf of a nursing home resident. Prospect theory provides a framework for understanding how people weigh decisions. In the current study, prospect theory concepts are used to build understanding about how family members weigh medical decisions for an NH resident diagnosed with cancer. This is a secondary analysis of qualitative interview data from 24 family members of nursing home residents. Prospect theory concepts of gain, loss, risk, and reference point were used deductively in qualitative content analysis. Themes were developed by comparing content related to these four concepts, across the transcripts from the 24 participants. Three themes comprise the main findings, including "Don't prolong this," "A good ending is a gain," and "Experience can facilitate seeing the big picture." Prospect theory concepts applied to decisions faced by family members were useful in building an understanding of what participants considered as gains, losses, risks, and reference points. Many participants framed the medical decisions within the larger context of the resident's life and concluded that jeopardizing the chance for a peaceful dying process was too high a risk. Medical interventions were selected or avoided because of the impact on a comfortable dying process; considered a gain. Advance care planning discussions and goals of care discussions can benefit by directly addressing what residents/patients, families, and health practitioners consider outcomes worth pursuing and avoiding.

Keywords: Aging/older adults; family; long-term care; palliative care; surrogate.

MeSH terms

  • Adult
  • Advance Care Planning / organization & administration*
  • Aged
  • Aged, 80 and over
  • Decision Making
  • Family / psychology*
  • Female
  • Homes for the Aged / organization & administration*
  • Humans
  • Interviews as Topic
  • Male
  • Middle Aged
  • Neoplasms / epidemiology*
  • Nursing Homes / organization & administration*
  • Qualitative Research
  • Social Work / organization & administration
  • Terminal Care / organization & administration*