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Can J Aging. 2019 Feb 18:1-14. doi: 10.1017/S0714980818000521. [Epub ahead of print]

Optimizing Participation of Older Adults with Cognitive Deficits Post-stroke: Types of Help and Caregiver Burden.

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School of Rehabilitation,Faculty of Medicine and Health Sciences,Université de Sherbrooke,and Research Center on Aging, Québec.
School of Rehabilitation,Faculty of Medicine and Health Sciences,Université de Sherbrooke, Québec.
Research Center,Institut universitaire de Gériatrie de Montréal and Department of Psychology,Université de Montréal, Québec.


ABSTRACTThis longitudinal mixed-method study examined the types of help provided by caregivers to optimize participation of older adults with cognitive deficits post-stroke (care recipients), and how these types of help varied with caregiver's burden. Twelve family caregivers of care recipients post-stroke completed a burden questionnaire and semi-structured interviews one month, three months, and six months following care recipient's discharge home from acute care, rehabilitation, or day hospital. Care recipients completed cognitive tests and a social participation questionnaire. Types of help caregivers provided differed according to the amount of daily living support, degree of concern for care recipient's well-being, and impact on caregivers' social life. Interestingly, types of help fostering care recipient's social participation, self-esteem, and abilities were unrelated to a negative impact on caregivers' social life. Understanding how different types of help relate to caregiver burden could improve the types of help to optimize care recipients' social participation without overburdening caregivers.


accident vasculaire cérébral; activities of daily living; activités de la vie quotidienne; aging; caregivers; mental processes; processus mentaux; proches aidants; qualitatif; qualitative; stroke; vieillissement


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