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BMC Gastroenterol. 2019 Feb 13;19(1):30. doi: 10.1186/s12876-019-0946-8.

Inflammatory bowel disease patient perceptions of diagnostic and monitoring tests and procedures.

Author information

Department of Management, Université Laval, Quebec, G1V 0A6, Canada.
Department of Management, Université Laval, Quebec, G1V 0A6, Canada.
Division of Gastroenterology, McGill University Health Centre, Montreal, H3A 0G4, Canada.
iGenoMed Consortium, Montreal, H1T 1C8, Canada.
Department of Family Medicine and Emergency Medicine, Université de Montréal, Montreal, H3T 1J4, Canada.
Department of Medicine, Université de Montréal & Montreal Heart Institute, Montreal, H1T 1C8, Canada.



Inflammatory Bowel Disease (IBD) with its high incidence and prevalence rates in Canada generates a heavy burden of tests and procedures. The purpose of this study is to gain a better understanding of the transfer of information from physician to patient, as well as the patient understanding and perceptions about the tests and procedures that are ordered to them in the context of IBD diagnosis and monitoring.


An online questionnaire was completed by 210 IBD patients in Canada. Information on the five most-often used tests or procedures in IBD diagnosis/monitoring was collected. These include: general blood test, colonoscopy, colon biopsy, medical imaging and stool testing.


The general blood test is both the most ordered and most refused tool. It is also the one with which patients are the least comfortable, the one that generates the least concern and the one about which physicians provide the least information. The stool test is the test/procedure with which patients are the most comfortable. Procedures raise more concerns among patients and physicians provide more information about why they are needed, their impact and the risks they present. Very little information is provided to patients about the risks of having false positives or negative tests.


This study provides an initial understanding of patient perceptions, the transfer of information from a physician to a patient and a patient's understanding of the tests and procedures that will be required to treat IBD throughout what is a lifelong disease. The present study takes a first step in better understanding the acceptance of the test or procedure by IBD patients, which is essential for them to adhere to the monitoring process.


Diagnostic; Inflammatory bowel disease; Monitoring; Procedures; Tests

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