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J Geriatr Psychiatry Neurol. 2019 Jan 16:891988718824039. doi: 10.1177/0891988718824039. [Epub ahead of print]

Resilience in Carers of People With Young-Onset Alzheimer Disease.

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1 Center for Alzheimer's Disease and Related Disorders, Institute of Psychiatry, Universidade Federal do Rio de Janeiro, Rio de Janeiro, Brazil.
2 Department of Political Sociology, Universidade Federal de Santa Catarina, Florianópolis, Brazil.
3 Norwegian Advisory Unit for Aging and Health Vestfold Health Trust, Tønsberg, Norway.
4 VID Specialized University College, Oslo, Norway.
5 Department of Geriatric Medicine, Oslo University Hospital, Oslo, Norway.
6 Post-graduation Program of Translational Biomedicine, Universidade do Grande Rio (Unigranrio), Duque de Caxias, Brazil.


Young-onset Alzheimer disease (YOAD) causes psychological and emotional difficulties for carers. However, even in the face of considerable caregiving demands and burden, some carers are resistant to stress, which may be a sign of resilience. This study investigated whether the clinical symptoms of the person with YOAD might be associated with resilience in their carers. A consecutive series of 43 persons with YOAD and their 43 family caregivers were assessed. The carers showed moderate to high level of resilience, low level of anxiety and depressive symptoms, and moderate level of burden. No relationship was found between resilience and sociodemographic characteristics of both carers and care recipient and with clinical characteristics of persons with YOAD. A linear regression analysis showed that resilience was inversely associated with carers' depressive symptoms. The findings suggest that resilience may mainly be related to carers' mental health.


Alzheimer disease; carers; depression; resilience; young onset


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