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Scand J Caring Sci. 2019 Jun;33(2):400-408. doi: 10.1111/scs.12636. Epub 2019 Jan 3.

Next of kin's perceptions of the meaning of participation in the care of older persons in nursing homes: a phenomenographic study.

Author information

1
Faculty of Medicine, Department of Health Sciences, Lund University, Lund, Sweden.
2
Department of Medical and Health Sciences, Division of Community Medicine, Linköping University, Linköping, Sweden.
3
Faculty of Health and Society, Department of Social Work, Malmö University, Malmö, Sweden.
4
Faculty of Health and Life Sciences, School of Health and Caring Sciences, Linnaeus University, Kalmar, Sweden.
5
Centre for Collaborative Palliative Care, Linnaeus University, Växjö, Sweden.

Abstract

BACKGROUND:

Being involved in the care of a loved one is a desire of many next of kin. However, according to several studies of the perceptions of nursing home staff, the involvement of next of kin is not an obvious part of care. To be able to involve next of kin in care at nursing homes, the perceptions of what participation means are an important piece of knowledge. The aim of this study was therefore to describe variations in next of kin's perceptions of the meaning of participation in the care of older persons living in nursing homes.

METHODS:

Eighteen next of kin of older persons living in ten nursing homes in Sweden were recruited for interviews. The study design was based on a phenomenographic approach, focusing on the qualitatively different ways in which a person perceives, experiences or conceptualises a phenomenon or certain aspect of reality.

RESULTS:

Five categories emerged from analysis of the interviews, representing the next of kin's perceptions of the meaning of participation in the care of older persons in nursing homes: be present; communicate; monitor; do practical tasks; and to represent. The next of kin expressed meanings that belonged to more than one category, and the categories were interdependent.

CONCLUSIONS:

Our results indicate that there are several meanings of next of kin's perceptions of participation at nursing homes. Nursing home staff's knowledge of these perceptions is important to enable next of kin to participate according to their own preferences.

KEYWORDS:

80 years or older; aged; next of kin; nursing home; participation; phenomenography

PMID:
30604875
DOI:
10.1111/scs.12636

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