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Twin Res Hum Genet. 2018 Nov 21:1-5. doi: 10.1017/thg.2018.60. [Epub ahead of print]

Human Genetics Society of Australasia Position Statement: Genetic Testing and Personal Insurance Products in Australia.

Author information

1
The University of Sydney,Faculty of Medicine and Health,Sydney School of Public Health,Sydney Health Ethics,Sydney,New South Wales,Australia.
2
Victorian Clinical Genetics Services,Murdoch Children's Research Institute,Melbourne,Victoria,Australia.
3
Genetics of Learning Disability Service,Waratah,New South Wales,Australia.
4
Institute of Health and Biomedical Innovation & School of Biomedical Sciences,Queensland University of Technology,Brisbane,Queensland,Australia.
5
Australian Genomics Health Alliance,Melbourne,Victoria,Australia.

Abstract

The expansion of genetic and genomic testing in clinical practice and research and the growing market for at home personal genome testing has led to increased awareness about the impact of this form of testing on insurance. Genetic or genomic information can be requested by providers of mutually rated insurance products, who may then use it when setting premiums or determining eligibility for cover under a particular product. Australian insurers are subject to relevant legislation and an industry standard that was updated in late 2016. In 2018, the Human Genetics Society of Australasia updated its position statement on genetic testing and life insurance to account for these changes and to increase the scope of the statement to include a wider scope of insurance products that are not rated according to community risk, such as life, critical care, and income protection products. Recommendations include that providers of professional education involving genetics should include ethical, legal, and social aspects of insurance discrimination in their curricula; that the Australian government take a more active role in regulating use of genetic information in personal insurance, including enacting a moratorium on use of genetic test results; that information obtained in the course of a research project be excluded; and that there is improved engagement between the insurance industry, regulators, and the genetics profession.

KEYWORDS:

Australia; discrimination; genetic testing; genomics; insurance; regulation

PMID:
30458892
DOI:
10.1017/thg.2018.60

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