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J Pediatr Hematol Oncol. 2019 Oct;41(7):561-567. doi: 10.1097/MPH.0000000000001341.

Acceptability and Feasibility of a Disease-specific Patient Portal in Adolescents With Sickle Cell Disease.

Author information

1
Division of Behavioral Medicine.
2
Center for Innovation in Chronic Disease Care.
3
Department of Pediatrics, University of Cincinnati, Cincinnati, OH.
4
Division of Hematology, Cincinnati Children's Hospital Medical Center.

Abstract

OBJECTIVE:

To examine the acceptability, feasibility, and efficacy of a health care portal.

OBSERVATIONS:

Adolescents and young adults with sickle cell disease were taught how to use sickle cell disease conditions page in MyChart and completed questionnaires at baseline, postintervention (T2, 6 wk after baseline) and after 3 months (T3). In total, 44 participants (M age=18.82, SD=2.72) viewed an average of 58.07 pages from T1 to T2. The portal was highly accepted (90.32%). Efficacy data indicated that portal use was associated with improved patient-provider communication.

CONCLUSIONS:

Electronic portals are promising tools for improving medical self-management.

PMID:
30339657
PMCID:
PMC6472992
[Available on 2020-10-01]
DOI:
10.1097/MPH.0000000000001341

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