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J Endometr Pelvic Pain Disord. 2018 Jun;10(2):107-115. doi: 10.1177/2284026518780638. Epub 2018 Jun 19.

Lack of cross-cultural validity of the Endometriosis Health Profile-30.

Author information

1
Institute of Clinical Medicine, University of Oslo, Oslo, Norway.
2
Research Centre for Obstetrics and Gynecology, Oslo University Hospital, Oslo, Norway.
3
Institute of Health and Society, University of Oslo, Oslo, Norway.
4
Department of Transplantation Medicine, Oslo University Hospital, Oslo, Norway.
5
Oslo Center for Biostatistics and Epidemiology, Oslo University Hospital, Oslo, Norway.
6
Department of Reproductive Medicine, Oslo University Hospital, Oslo, Norway.
7
Department of Gynecology, Oslo University Hospital, Oslo, Norway.

Abstract

Introduction:

The Endometriosis Health Profile-30 is a disease-specific patient-reported outcome measure of health-related quality of life. Cross-cultural validation of the Endometriosis Health Profile-30 has been performed for several translated versions. The aim of this study was to evaluate the measurement properties of a Norwegian version Endometriosis Health Profile-30.

Methods:

This study was designed as a cross-sectional anonymous postal questionnaire study. A total of 157 women with endometriosis were included during a period from 2012 to 2013. Women aged 18-45 years were recruited from the Norwegian Endometriosis Association. Principal components analysis with varimax rotation was used to assess construct validity. Short Form-36 was used to determine convergent validity. Cronbach's alpha was used to measure internal consistency. Intraclass correlation coefficients and paired t-tests were used to evaluate test-retest reliability. Floor and ceiling effects were estimated.

Results:

Factor analysis resulted in a three and five-factor model for the core and modular questionnaire, respectively. Factor analysis could not support construct validity of the scales self-image and treatment. The Norwegian version Endometriosis Health Profile-30 demonstrated acceptable internal consistency and test-retest reliability, except for the scale relationship with children. Floor effects were observed for the scales self-image (20.1%), work life (33.9%), relationship with children (34.2%), and medical profession (20.5%).

Conclusion:

The construct self-image does not seem to be measured appropriately by the Norwegian version Endometriosis Health Profile-30, suggesting a lack of cross-cultural validity of the Endometriosis Health Profile-30. With multinational studies increasing, adequate translation, cross-cultural adaptation, and cross-cultural validation of instruments are essential to ensure equivalence in languages and cultures other than the original.

KEYWORDS:

Endometriosis; Endometriosis Health Profile-30; health-related quality of life; reliability; validity

Conflict of interest statement

Declaration of conflicting interests: The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

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