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J Am Coll Radiol. 2018 Oct 5. pii: S1546-1440(18)31063-9. doi: 10.1016/j.jacr.2018.08.033. [Epub ahead of print]

Electronic Patient-Reported Outcomes: Semi-Automated Data Collection in the Interventional Radiology Clinic.

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Division of Interventional Radiology, Stanford University School of Medicine, Stanford, California.
Division of Pain Medicine, Stanford University School of Medicine, Stanford, California.
Division of Interventional Radiology, Stanford University School of Medicine, Stanford, California. Electronic address:



Patient-reported outcomes are important for clinical research and will likely be used in the near future as a metric for physician reimbursement. This study aims to evaluate the implementation of an electronic data collection system for deep vein thrombosis and lymphedema quality-of-life (QOL) questionnaires in a tertiary care interventional radiology practice.


A single provider's clinic patients were automatically e-mailed validated questionnaires 1 week before their appointments. If not completed via e-mail, the questionnaire was administered on an electronic tablet in clinic by a research coordinator. Patients were also sent postprocedure questionnaires.


In all, 106 patients visited the clinic for a pre-intervention venous consultation. Of them, 96% (n = 102 of 106) completed the pre-intervention questionnaire: 48% (n = 47 of 98) via e-mail and 52% (n = 51 of 98) via tablet. Of the patients who had procedures and were sent questionnaires, 49% (n = 26 of 53) were seen in person. Of the postprocedure in-person clinic patients, 76% (n = 20 of 26) completed the questionnaire via e-mail, and the remainder with the tablet in clinic. Twenty-seven of the 53 (51%) patients did not return for follow-up and instead were sent an electronic questionnaire as their only source of follow-up, of which 74% (n = 20 of 27) complied.


After an initial introduction to electronic QOL reporting, patients were more likely to complete the questionnaires remotely for their follow-up appointment. A semi-automated electronic QOL system allows physicians to collect patient outcome data even in the absence of a clinic visit.


CHOIR; DVT; ePRO; lymphedema; patient-reported outcomes


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