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Dev Med Child Neurol. 2019 Jan;61(1):62-68. doi: 10.1111/dmcn.14053. Epub 2018 Oct 7.

Family-centred health care for children with cerebral palsy.

Author information

1
Department of Pediatrics, McGill University, Montreal, QC, Canada.
2
IWK Health Centre, Halifax, NS, Canada.
3
Alberta Children's Hospital, Calgary, AB, Canada.
4
BC Children's Hospital, Vancouver, BC, Canada.
5
Janeway Health Centre, St. John's, NL, Canada.
6
Centre for Outcomes Research and Evaluation, Research Institute of the McGill University Health Centre, Montreal, QC, Canada.
7
School of Physical and Occupational Therapy, McGill University, Montreal, QC, Canada.

Abstract

AIM:

To identify characteristics of young children with cerebral palsy (CP), and intrinsic and extrinsic factors, that may be associated with parental perceptions regarding family-centred health care services.

METHOD:

We conducted a cross-sectional study, drawing our sample from the Canadian Cerebral Palsy Registry (CCPR). Parents rated the extent of family-centred care provided by their child's health care teams using the 56-item Measures of Process of Care (MPOC) questionnaire. Environmental and CP phenotypic variables were extracted from the CCPR for group comparisons. Low and high MPOC-56 raters were also compared.

RESULTS:

Valid responses were obtained from 282 families (90%). All MPOC-56 subscales were highly rated (median ≥6.0), indicating satisfaction with health care services, with the exception of the Providing General Information subscale (median 4.8, interquartile range 3.2-6.0). Parents from Nova Scotia rated all subscales significantly higher than parents from other regions. CP subtype and severity were not significantly associated with MPOC-56 subscale scores. Higher socio-economic status was associated with lower MPOC-56 subscale scores. Higher paternal educational attainment and household income were significantly associated with lower scores on the Providing General Information and Providing Specific Information about the Child subscales respectively.

INTERPRETATION:

Participants affirmed the provision of family-centred services from Canadian pediatric rehabilitation centres. Sociodemographic factors were associated with parental perceptions of family-centred services.

WHAT THIS PAPER ADDS:

Sociodemographic factors were associated with parental perceptions of family-centred care. Factors intrinsic to the child's cerebral palsy were not associated with parental perceptions.

PMID:
30294783
DOI:
10.1111/dmcn.14053
[Indexed for MEDLINE]

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