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Braz J Infect Dis. 2018 Jul - Aug;22(4):288-293. doi: 10.1016/j.bjid.2018.07.003. Epub 2018 Aug 24.

The impact of urinary incontinence on the quality of life and on the sexuality of patients with HAM/TSP.

Author information

1
Universidade de São Paulo, Faculdade de Medicina, Hospital das Clínicas, Divisão de Psicologia, São Paulo, SP, Brazil. Electronic address: maria.gascon@hc.fm.usp.br.
2
Universidade de São Paulo, Faculdade de Medicina, Hospital das Clínicas, Divisão de Psicologia, Programa de Melhoria em Psicologia Hospitalar, São Paulo, SP, Brazil.
3
Instituto de Infectologia Emilio Ribas, Serviços de Cuidados Paliativos, São Paulo, SP, Brazil.
4
Universidade de São Paulo, Faculdade de Medicina, São Paulo, SP, Brazil.
5
Instituto de Infectologia Emilio Ribas, Coordenação de Neurologia, São Paulo, SP, Brazil.

Abstract

This study evaluated the impact of urinary incontinence (UI) on sexuality, body image, mood, and quality of life of patients with myyelopathy associated with HTLV-1/tropical spastic paraparesis (HAM/TSP). The sample consisted of 31 HAM/TSP outpatients, of both sexes, followed-up at the Emílio Ribas Infectology Institute. The following instruments were used: sociodemographic questionnaire, Hospital Anxiety and Depression Scale (HAD), Body Image Assessment Scale, Sexual Quotient Female (QS-F) and Male (QS-M) Versions, King's Health Questionnaire (KHQ), and Revised OSAME Motor Disability Score. Data analysis was performed using descriptive statistics and the Mann-Whitney U-test was used for group comparison. The presence of UI was reported by 13 (41.9%) patients. Based on the quality of life questionnaire, patients with UI had a significant impact in the following domains: incontinence impact, daily life activities limitation, physical and social limitations, social relations, emotions, sleep and disposition, and severity measurements. Most participants had no anxiety (21; 67.7%) or depression symptoms (18; 58.1%). Regarding the sexual coefficient, 13 (41.9%) participants had sexual dissatisfaction.

CONCLUSION:

UI is common in HTLV-1 patients and may cause serious impairment in quality of life, with social, psychological and hygienic consequences. Nonetheless, there are few studies on this subject and their impact on mood and sexuality.

KEYWORDS:

HAM/TSP; Quality of life; Urinary incontinence

PMID:
30145198
DOI:
10.1016/j.bjid.2018.07.003
[Indexed for MEDLINE]
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