Format

Send to

Choose Destination
J Appl Res Intellect Disabil. 2019 Jan;32(1):15-22. doi: 10.1111/jar.12497. Epub 2018 Jul 15.

The POMONA-ESP project methodology: Collecting data on health indicators for people with intellectual developmental disorders.

Author information

1
Intellectual Disability and Developmental Disorders Research Unit (UNIVIDD) - Fundació Villablanca, IISPV, Universitat Rovira i Virgili, Reus, Spain.
2
Department of Psychology, Universitat Rovira i Virgili, Tarragona, Spain.
3
Centre of Biomedical Research Network on Mental Health (CIBERSAM), Madrid, Spain.
4
Research Center in Behavioral Assessment (CRAMC), Universitat Rovira i Virgili, Tarragona, Spain.
5
Laboratory of Toxicology and Environmental Health, Universitat Rovira i Virgili, Tarragona, Spain.
6
Parc Sanitari Sant Joan de Déu, Sant Boi de Llobregat, Spain.
7
Faculty of Education, Universitat de Barcelona, Barcelona, Spain.
8
Plena Inclusión España, Madrid, Spain.
9
Centre for Mental Health Research, Research School of Population Health, ANU College of Health and Medicine, Australian National University, Canberra, ACT, Australia.

Abstract

BACKGROUND:

People with intellectual developmental disorders have significant health disparities and a lack of proper attention to their health needs. They have been underrepresented in scientific research, and very few studies have been carried out using a representative randomized sample. The aim of this study was to describe the methods used in the POMONA-ESP project to recruit a representative and randomized sample of participants with intellectual developmental disorders.

METHODS:

The POMONA-ESP project is an observational cross-sectional study. It aims to explore the health status of people with intellectual developmental disorders across Spain and the use they make of health services.

RESULTS AND CONCLUSIONS:

The results of the POMONA-ESP project may have a major impact on people with intellectual developmental disorders and society in general. It is the first study to obtain geographically representative epidemiological data from a large sample, information that is fundamental to improving care and healthcare planning for people with intellectual developmental disorders.

KEYWORDS:

developmental disabilities; health profiles; intellectual developmental disorders; intellectual disability; methods

PMID:
30009410
DOI:
10.1111/jar.12497
[Indexed for MEDLINE]

Supplemental Content

Full text links

Icon for Wiley
Loading ...
Support Center