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J Appl Res Intellect Disabil. 2019 Jan;32(1):23-34. doi: 10.1111/jar.12498. Epub 2018 Jun 27.

Health indicators in intellectual developmental disorders: The key findings of the POMONA-ESP project.

Author information

1
Intellectual Disability and Developmental Disorders Research Unit (UNIVIDD) - Fundació Villablanca, IISPV, Universitat Rovira i Virgili, Reus, Spain.
2
Department of Psychology, Universitat Rovira i Virgili, Tarragona, Spain.
3
Centre for Mental Health Research, Research School of Population Health, ANU College of Health and Medicine, Australian National University, Canberra, ACT, Australia.
4
Research Center in Behavioral Assessment (CRAMC), Universitat Rovira i Virgili, Tarragona, Spain.
5
Laboratory of Toxicology and Environmental Health, Universitat Rovira i Virgili, Tarragona, Spain.
6
Centre of Biomedical Research Network on Mental Health (CIBERSAM), Madrid, Spain.
7
Parc Sanitari Sant Joan de Déu, Sant Boi de Llobregat, Spain.
8
Faculty of Education, Universitat de Barcelona, Barcelona, Spain.
9
Plena Inclusión España, Madrid, Spain.
10
Asociación en Favor de las Personas con Discapacidad Intelectual de Córdoba- APROSUB, Córdoba, Spain.

Abstract

BACKGROUND:

The aim of this paper was to summarize the main results of the POMONA-ESP project, the first study to explore health status in a large representative, randomized and stratified sample of people with intellectual developmental disorders in Spain.

METHODS:

The POMONA-ESP project collected information about the health of 953 individuals with intellectual developmental disorders.

RESULTS:

Diseases such as urinary incontinence, oral problems, epilepsy, constipation or obesity were highly prevalent among the participants; with gender-differentiated prevalences for certain conditions, and age and intellectual disability level as risk factors for disease. Overmedication was common in the sample, and drugs were often prescribed without any clinical indication or follow-up. The present authors also found a lack of important relevant information about the participant's health and a lack of adequate genetic counselling.

CONCLUSIONS:

Our findings may contribute to a better understanding of health status and needs of people with intellectual developmental disorders and suggest several courses of action to improve their health care.

KEYWORDS:

developmental disabilities; health conditions; health profiles; intellectual developmental disorders; intellectual disability

PMID:
29947460
DOI:
10.1111/jar.12498
[Indexed for MEDLINE]

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