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Qual Life Res. 2018 Sep;27(9):2471-2476. doi: 10.1007/s11136-018-1896-2. Epub 2018 Jun 20.

Refining and supplementing candidate measures of psychological well-being for the NIH PROMIS®: qualitative results from a mixed cancer sample.

Author information

1
Department of Social Sciences and Health Policy, Wake Forest School of Medicine, Medical Center Boulevard, Winston-Salem, NC, 27157, USA. jsalsman@wakehealth.edu.
2
Comprehensive Cancer Center of Wake Forest University, Winston-Salem, NC, USA. jsalsman@wakehealth.edu.
3
Department of Psychology, University of Connecticut, Storrs, CT, USA.
4
Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.
5
The Robert H. Lurie Comprehensive Cancer Center of Northwestern University, Chicago, IL, USA.
6
Department of Obstetrics and Gynecology, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.
7
Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, NY, USA.
8
Department of Psychology, Colorado State University, Fort Collins, CO, USA.
9
Department of Psychology, University of Notre Dame, South Bend, IN, USA.

Abstract

PURPOSE:

The Patient-Reported Outcomes Measurement Information System (PROMIS) is a National Institutes of Health initiative designed to improve patient-reported outcomes using state-of-the-art psychometric methods. The aim of this study is to describe qualitative efforts to identify and refine items from psychological well-being subdomains for future testing, psychometric evaluation, and inclusion within PROMIS.

METHOD:

Seventy-two items from eight existing measures of positive affect, life satisfaction, meaning & purpose, and general self-efficacy were reviewed, and 48 new items were identified or written where content was lacking. Cognitive interviews were conducted in patients with cancer (n = 20; 5 interviews per item) to evaluate comprehensibility, clarity, and response options of candidate items.

RESULTS:

A Lexile analysis confirmed that all items were written at the sixth grade reading level or below. A majority of patients demonstrated good understanding and logic for all items; however, nine items were identified as "moderately difficult" or "difficult" to answer. Patients reported a strong preference for confidence versus frequency response options for general self-efficacy items.

CONCLUSIONS:

Altogether, 108 items were sufficiently comprehensible and clear (34 positive affect, 10 life satisfaction, 44 meaning & purpose, 20 general self-efficacy). Future research will examine the psychometric properties of the proposed item banks for further refinement and validation as PROMIS measures.

KEYWORDS:

Cancer; Cognitive interviews; Life satisfaction; Meaning; Measure development; PROMIS; Positive affect; Qualitative; Self-efficacy; Well-being

PMID:
29926344
DOI:
10.1007/s11136-018-1896-2
[Indexed for MEDLINE]

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