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G Ital Cardiol (Rome). 2018 Jun;19(6):386-393. doi: 10.1714/2922.29372.

[The effect of the transition care model on health perception among adolescents with congenital heart disease: a quasi-experimental study].

[Article in Italian]

Author information

1
U.O. Cardiologia Pediatrica e del Congenito Adulto.
2
Area di Ricerca e Sviluppo delle Professioni Sanitarie, IRCCS Policlinico San Donato, San Donato Milanese (MI).

Abstract

BACKGROUND:

The multidisciplinary standardized interventions to educate and support patients with congenital heart disease (CHD) are described as "Transition Clinic" (TC). TC represents a key element to deliver care for patients during the transition from childhood to adulthood. So far, there is a lack of empirical evidence regarding the impact of TC models on the improvement of health perception in adolescent patients with CHD (CHD-specific TC model). For this reason, the aim of this study is assess the impact of the TC model on CHD adolescent patients' health perception outcomes.

METHODS:

This study has a quasi-experimental design. Quality of life, satisfaction and health perception were assessed in T0 and after 1 year from enrollment (T1). During the follow-up period, the patients enrolled (aged 14 to 21 years) were involved in the CHD-specific TC model.

RESULTS:

The results are referred to the first 100 patients enrolled (mean age 14.79 ± 1.85 years; 60% male), as they have already completed the follow-up. The overall study is currently ongoing. According to Warnes' classification, 29% of patients had simple heart defects, 46% showed moderate complexity, and 25% showed severe complexity. The comparison between T0 and T1 showed statistically significant improvement in T1 regarding pain/discomfort, anxiety/depression and perception of health status (EQ-5D), general satisfaction and quality of life (LAS QoL).

CONCLUSIONS:

The preliminary results showed in this study are encouraging, and confirm the need to create a multidisciplinary standardized intervention of education and support to deliver care for adolescent patients with CHD.

PMID:
29912228
DOI:
10.1714/2922.29372

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