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J Pediatr Adolesc Gynecol. 2018 Dec;31(6):592-596. doi: 10.1016/j.jpag.2018.06.001. Epub 2018 Jun 12.

Adolescent-Parent Dyadic Retention in an Interview Study and Changes in Willingness to Participate in a Hypothetical Microbicide Safety Study.

Author information

1
Department of Pediatrics, Columbia University Medical Center, Vagelos College of Physicians and Surgeons, New York, New York; NewYork-Presbyterian Hospital, New York, New York. Electronic address: jenny.francis@utsouthwestern.edu.
2
Department of Pediatrics, Columbia University Medical Center, Vagelos College of Physicians and Surgeons, New York, New York.
3
Department of Biostatistics, Columbia University Medical Center, Mailman School of Public Health, New York, New York.
4
Department of Pediatrics, Weill Cornell Medical College, New York, New York.
5
Department of Pediatrics, Columbia University Medical Center, Vagelos College of Physicians and Surgeons, New York, New York; NewYork-Presbyterian Hospital, New York, New York; Heilbrunn Department of Population & Family Health, Columbia University Medical Center, Mailman School of Public Health, New York, New York.
6
Department of Health Sciences Research, Mayo Clinic, Rochester, Minnesota.
7
Department of Pediatrics, Columbia University Medical Center, Vagelos College of Physicians and Surgeons, New York, New York; NewYork-Presbyterian Hospital, New York, New York; Department of Psychiatry, Columbia University Medical Center, Vagelos College of Physicians and Surgeons, New York, New York.

Abstract

STUDY OBJECTIVE:

In this study we describe adolescent and parent retention and changes in willingness to participate (WTP) in research among adolescents, parents, and adolescent-parent dyads.

DESIGN AND SETTING:

Adolescent-parent dyads were recruited to participate in a longitudinal study to assess research participation attitudes using simultaneous individual interviews of the adolescent and parent with a return visit 1 year later using the same interview.

PARTICIPANTS:

Adolescents (14-17 years old) and their parents.

INTERVENTIONS:

None.

MAIN OUTCOME MEASURES:

The relationship between participant characteristics and dyad retention was assessed. WTP was measured on a Likert scale and dichotomized (willing/unwilling) to assess changes in WTP attitudes over time for adolescents, parents, and dyads.

RESULTS:

Eighty-three percent of the 300 dyads were retained. Dyads in which there was successful contact with the parent before follow-up were more likely to be retained (odds ratio, 4.88; 95% confidence interval, 2.57-9.26). For adolescents at baseline, 59% were willing to participate and 55% were willing to participate at follow-up (McNemar S = 0.91; P = .34). For parents at baseline, 51% were willing to participate and 57% were willing to participate at follow-up (McNemar S = 5.12; P = .02). For dyads at baseline, 57% were concordant (in either direction) and 70% of dyads were concordant at follow-up (McNemar S = 10.56; P = .001).

CONCLUSION:

Over 1 year, parent contact might positively influence successful adolescent retention. Parents become more willing to let their adolescents participate over time, with dyads becoming more concordant about research participation.

KEYWORDS:

Adolescent research participation; Clinical trials; Parent communication; Sexually transmitted infections; Topical microbicides

PMID:
29906513
PMCID:
PMC6218291
[Available on 2019-12-01]
DOI:
10.1016/j.jpag.2018.06.001
[Indexed for MEDLINE]

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