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Paediatr Child Health. 2018 May;23(3):209-213. doi: 10.1093/pch/pxx193. Epub 2018 May 11.

Decision-making around gastrostomy tube feeding in children with neurologic impairment: Engaging effectively with families.

Author information

1
Canadian Paediatric Society, Hospital Paediatrics Section, Ottawa, Ontario.

Abstract

Children with neurologic impairment may not be able to feed safely or sufficiently by mouth to maintain an adequate nutritional state. Gastrostomy tube (G-tube) feeding is an important, often essential, intervention in such situations. However, many parents and families struggle with the decision to proceed with G-tube feeding. This practice point reviews common reasons for decisional conflict in parents and explores key aspects of life with G-tube feeding. A framework for shared decision-making and the International Classification of Functioning, Disability and Health (ICF) approach are highlighted. Practical recommendations for clinicians on engaging with families for decision-making around this life-changing intervention are provided.

KEYWORDS:

G-tube; ICF; Shared decision-making

PMID:
29769808
PMCID:
PMC5951081
[Available on 2019-06-01]
DOI:
10.1093/pch/pxx193

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