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Pathologe. 2018 Jul;39(4):289-296. doi: 10.1007/s00292-018-0435-9.

[Requirements for a cross-location biobank IT infrastructure : Survey of stakeholder input on the establishment of a biobank network of the German Biobank Alliance (GBA)].

[Article in German]

Author information

1
Lehrstuhl für Medizinische Informatik, Friedrich-Alexander-Universität Erlangen-Nürnberg, Wetterkreuz 13, 91058, Erlangen, Deutschland. christina.schuettler@fau.de.
2
Zentralisierte Biomaterialbank der Medizinischen Fakultät der RWTH Aachen University, Aachen, Deutschland.
3
BioMaterialBank Heidelberg, Universitätsklinikum Heidelberg, Heidelberg, Deutschland.
4
Medizinische Informatik in der Translationalen Onkologie, Deutsches Krebsforschungszentrum, Heidelberg, Deutschland.
5
Zentrale Biomaterialbank (ZeBanC) und German Biobank Node (GBN), Charité-Universitätsmedizin Berlin, Berlin, Deutschland.
6
UMG Biobank, Universitätsmedizin Göttingen, Göttingen, Deutschland.
7
Lehrstuhl für Medizinische Informatik, Friedrich-Alexander-Universität Erlangen-Nürnberg, Wetterkreuz 13, 91058, Erlangen, Deutschland.

Abstract

BACKGROUND:

The large number of biobanks within Germany results in a high degree of heterogeneity with regard to the IT components used at the respective locations. Within the German Biobank Alliance (GBA), 13 biobanks implement harmonized processes for the provision of biomaterial and accompanying data.

OBJECTIVES:

The networking of the individual biobanks and the associated harmonisation of the IT infrastructure should facilitate access to biomaterial and related clinical data.

METHODS:

For this purpose, the relevant target groups were first identified in order to determine their requirements for IT solutions to be developed in a workshop.

RESULTS:

Of the seven identified interest groups, three were initially invited to a first round of discussions. The stakeholder input expressed resulted in a catalogue of requirements with regard to IT support for (i) a sample and data request, (ii) the handling of patient consent and inclusion, and (iii) the subsequent evaluation of the sample and data request.

CONCLUSIONS:

The next step is to design the IT solutions as prototypes based on these requirements. In parallel, further user groups are being surveyed in order to be able to further concretise the specifications for development.

KEYWORDS:

Biological specimen banks; Medical informatics; Needs assessment; Request management; Stakeholder participation

PMID:
29691676
DOI:
10.1007/s00292-018-0435-9
[Indexed for MEDLINE]

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