Format

Send to

Choose Destination
Rheumatol Int. 2018 Apr;38(Suppl 1):203-209. doi: 10.1007/s00296-018-3952-1. Epub 2018 Apr 7.

The Georgian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

Author information

1
Division of Rheumatology, M. Iashvili Children's Central Clinic, 2/6 Lubliana str. IV floor, 0159, Tbilisi, Georgia. makaioseliani@yahoo.com.
2
Department of Pediatrics and Adolescent Medicine, Tbilisi State Medical University Pediatric Clinic, Tbilisi, Georgia.
3
Clinica Pediatrica e Reumatologia, Paediatric Rheumatology International Trials Organisation (PRINTO), Istituto Giannina Gaslini, Via Gaslini 5, 16147, Genoa, Italy.
4
Dipartimento di Pediatria, Università di Genova, Genoa, Italy.
5
Clinica Pediatrica e Reumatologia, Paediatric Rheumatology International Trials Organisation (PRINTO), Istituto Giannina Gaslini, Via Gaslini 5, 16147, Genoa, Italy. nicolaruperto@gaslini.org.

Abstract

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Georgian language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 100 JIA patients (26% systemic, 57% oligoarticular, 16% RF negative polyarthritis, and 1% RF positive polyarthritis) and 100 healthy children, were enrolled at two paediatric rheumatology centre. Notably, none of the enrolled JIA patients is affected with psoriatic arthritis or with enthesitis-related arthritis or with undifferentiated arthritis. The JAMAR components discriminated healthy subjects from JIA patients, except for the school-related problems variable. All JAMAR components revealed good psychometric performances. In conclusion, the Georgian version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.

KEYWORDS:

Disease status; Functional ability; Health related quality of life; JAMAR; Juvenile idiopathic arthritis

PMID:
29637371
PMCID:
PMC5893668
DOI:
10.1007/s00296-018-3952-1
[Indexed for MEDLINE]
Free PMC Article

Supplemental Content

Full text links

Icon for Springer Icon for PubMed Central
Loading ...
Support Center