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Rheumatol Int. 2018 Apr;38(Suppl 1):307-313. doi: 10.1007/s00296-018-3964-x. Epub 2018 Apr 7.

The Paraguayan Spanish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

Author information

1
Reumatología Pediátrica, Cátedra y Servicio de Pediatría, Hospital de Clínicas, Facultad de Ciencias Médicas, Universidad Nacional de Asunción, Mariscal Lopez 1102 Casi Cruzada De La Amistad, San Lorenzo, Paraguay. zoiloma@hotmail.com.
2
Departamento de Reumatología, Hospital General de Mexico, Mexico, Mexico.
3
Clinica Pediatrica e Reumatologia, Paediatric Rheumatology International Trials Organisation (PRINTO), Istituto Giannina Gaslini, Via Gaslini 5, 16147, Genoa, Italy.
4
Dipartimento di Pediatria, Università di Genova, Genoa, Italy.
5
Clinica Pediatrica e Reumatologia, Paediatric Rheumatology International Trials Organisation (PRINTO), Istituto Giannina Gaslini, Via Gaslini 5, 16147, Genoa, Italy. nicolaruperto@gaslini.org.

Abstract

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Paraguayan Spanish language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, and construct validity (convergent and discriminant validity). A total of 51 JIA patients (2% systemic, 27.4% oligoarticular, 37.2% RF negative polyarthritis, 33.4% other categories) and 100 healthy children, were enrolled. The JAMAR components discriminated well healthy subjects from JIA patients. Notably, there was no significant difference between healthy subjects and their affected peers in the school-related problem variable. All JAMAR components revealed good psychometric performances. In conclusion, the Paraguayan Spanish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.

KEYWORDS:

Disease status; Functional ability; Health related quality of life; JAMAR; Juvenile idiopathic arthritis

PMID:
29637370
PMCID:
PMC5893697
DOI:
10.1007/s00296-018-3964-x
[Indexed for MEDLINE]
Free PMC Article

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