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Rheumatol Int. 2018 Apr;38(Suppl 1):339-346. doi: 10.1007/s00296-018-3978-4. Epub 2018 Apr 7.

The Russian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

Author information

1
Pediatric Department, V.A. Nasonova Research Institute of Rheumatology, Moscow, Kashirskoe shosse 34A, 115522, Russian Federation. irpetnik_vip@mail.ru.
2
Rheumatology Department, State Institution Scientific Center of Children Health of Rams Moscow, Moscow, Russian Federation.
3
Pediatric Department, V.A. Nasonova Research Institute of Rheumatology, Moscow, Kashirskoe shosse 34A, 115522, Russian Federation.
4
Clinica Pediatrica e Reumatologia, Paediatric Rheumatology International Trials Organisation (PRINTO), Istituto Giannina Gaslini, Via Gaslini 5, 16147, Genoa, Italy.
5
Dipartimento di Pediatria, Università di Genova, Genoa, Italy.
6
Clinica Pediatrica e Reumatologia, Paediatric Rheumatology International Trials Organisation (PRINTO), Istituto Giannina Gaslini, Via Gaslini 5, 16147, Genoa, Italy. nicolaruperto@gaslini.org.

Abstract

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Russian language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 100 JIA patients (25% systemic, 19% oligoarticular, 38% RF-negative polyarthritis, 18% other categories) and 198 healthy children, were enrolled in two centres. The JAMAR components discriminated healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Russian version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.

KEYWORDS:

Disease status; Functional ability; Health-related quality of life; JAMAR; Juvenile idiopathic arthritis

PMID:
29637369
PMCID:
PMC5893734
DOI:
10.1007/s00296-018-3978-4
[Indexed for MEDLINE]
Free PMC Article

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