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Rheumatol Int. 2018 Apr;38(Suppl 1):171-178. doi: 10.1007/s00296-018-3958-8. Epub 2018 Apr 7.

The Farsi version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

Author information

1
Department of Pediatrics and Rheumatology, Rheumatology Research Center, Shariati Hospital, Tehran University of Medical Sciences, Karegar Ave., Tehran, 14114, Islamic Republic of Iran. nshafaie_iranpedrheum@yahoo.com.
2
Department of Pediatrics, Tehran University of Medical Sciences, Tehran, Islamic Republic of Iran.
3
Children Medical Center, Pediatric Center of Excellence, Tehran, Islamic Republic of Iran.
4
Iranian Center of Pediatric Rheumatology, Valiasr Hospital, Imam Khomeini Complex, Tehran, Islamic Republic of Iran.
5
Clinica Pediatrica e Reumatologia, Paediatric Rheumatology International Trials Organisation (PRINTO), Istituto Giannina Gaslini, Via Gaslini 5, 16147, Genoa, Italy.
6
Dipartimento di Pediatria, Università di Genova, Genoa, Italy.
7
Clinica Pediatrica e Reumatologia, Paediatric Rheumatology International Trials Organisation (PRINTO), Istituto Giannina Gaslini, Via Gaslini 5, 16147, Genoa, Italy. nicolaruperto@gaslini.org.

Abstract

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Farsi language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 102 JIA patients (14.7% systemic JIA, 67.6% oligoarticular, 15.7% RF negative polyarthritis, 2.0% other categories) and 198 healthy children, were enrolled in three paediatric rheumatology centres. Notably, none of the enrolled JIA patients is affected with enthesitis-related arthritis or undifferentiated arthritis. The JAMAR components discriminated healthy subjects from JIA patients. All JAMAR components revealed satisfactory psychometric performances. In conclusion, the Farsi version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.

KEYWORDS:

Disease status; Functional ability; Health-related quality of life; JAMAR; Juvenile idiopathic arthritis

PMID:
29637366
PMCID:
PMC5893669
DOI:
10.1007/s00296-018-3958-8
[Indexed for MEDLINE]
Free PMC Article

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