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Rheumatol Int. 2018 Apr;38(Suppl 1):35-42. doi: 10.1007/s00296-018-3984-6. Epub 2018 Apr 7.

The American English version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

Author information

1
Division of Rheumatology, Cincinnati Children's Hospital Medical Center, 3333 Burnet Avenue, ML 4010, Cincinnati, OH, 45229-3039, USA. daniel.lovell@cchmc.org.
2
Division of Rheumatology, Cincinnati Children's Hospital Medical Center, 3333 Burnet Avenue, ML 4010, Cincinnati, OH, 45229-3039, USA.
3
Division of Rheumatology, Seattle Children's Hospital, Seattle, WA, USA.
4
Division of Rheumatology, The Children's Hospital of Philadelphia, Philadelphia, PA, USA.
5
Rheumatology Department, Royal Hospital for Children, Glasgow, UK.
6
Clinica Pediatrica e Reumatologia, Paediatric Rheumatology International Trials Organisation (PRINTO), Istituto Giannina Gaslini, Via Gaslini 5, 16147, Genoa, Italy.
7
Dipartimento di Pediatria, Università di Genova, Genoa, Italy.
8
Clinica Pediatrica e Reumatologia, Paediatric Rheumatology International Trials Organisation (PRINTO), Istituto Giannina Gaslini, Via Gaslini 5, 16147, Genoa, Italy. nicolaruperto@gaslini.org.

Abstract

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the American English language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 315 JIA patients (5.1% systemic, 31.1% oligoarticular, 34% RF negative polyarthritis, 29.8% other categories) and 98 healthy children, were enrolled in three centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the American English version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.

KEYWORDS:

Disease status; Functional ability; Health-related quality of life; JAMAR; Juvenile idiopathic arthritis

PMID:
29637338
PMCID:
PMC5893750
DOI:
10.1007/s00296-018-3984-6
[Indexed for MEDLINE]
Free PMC Article

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