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Rheumatol Int. 2018 Apr;38(Suppl 1):75-82. doi: 10.1007/s00296-018-3940-5. Epub 2018 Apr 7.

The Bulgarian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

Author information

1
Department of Paediatric Rheumatology, University Children Hospital, Acad.Iv.Geshov 11, 1606, Sofia, Bulgaria. drdmm@hotmail.com.
2
Department of Paediatrics, Varna Medical University, Varna, Bulgaria.
3
Department of Paediatric Rheumatology, University Children Hospital, Acad.Iv.Geshov 11, 1606, Sofia, Bulgaria.
4
Clinica Pediatrica e Reumatologia, Paediatric Rheumatology International Trials Organisation (PRINTO), Istituto Giannina Gaslini, Via Gaslini 5, 16147, Genoa, Italy.
5
Dipartimento di Pediatria, Università di Genova, Genoa, Italy.
6
Clinica Pediatrica e Reumatologia, Paediatric Rheumatology International Trials Organisation (PRINTO), Istituto Giannina Gaslini, Via Gaslini 5, 16147, Genoa, Italy. nicolaruperto@gaslini.org.

Abstract

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Bulgarian language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data, and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 183 JIA patients (12% systemic, 53.6% oligoarticular, 23.5% RF negative polyarthritis, 10.9% other categories) and 100 healthy children were enrolled in two centres. The JAMAR components discriminated well healthy subjects from JIA patients. Notably, there is no significant difference between the healthy subjects and their affected peers in the school-related problems variable. All JAMAR components revealed good psychometric performances. In conclusion, the Bulgarian version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.

KEYWORDS:

Disease status; Functional ability; Health-related quality of life; JAMAR; Juvenile idiopathic arthritis

PMID:
29637337
PMCID:
PMC5893711
DOI:
10.1007/s00296-018-3940-5
[Indexed for MEDLINE]
Free PMC Article

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