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Rheumatol Int. 2018 Apr;38(Suppl 1):179-186. doi: 10.1007/s00296-018-3950-3. Epub 2018 Apr 7.

The Finnish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

Author information

1
Pediatric Rheumatology, Children's Hospital, Helsinki University Central Hospital, Stenbackink, 11, 00290, Helsinki, Finland. pekka.lahdenne@hus.fi.
2
Pediatric Rheumatology, Children's Hospital, Helsinki University Central Hospital, Stenbackink, 11, 00290, Helsinki, Finland.
3
Department of Pediatrics, PEDEGO Research Unit, Medical Research Center, Oulu University Hospital and University of Oulu, Oulu, Finland.
4
Department of Pediatrics, Turku University Hospital, Turku, Finland.
5
Department of Pediatrics, Tampere University Hospital, Tampere, Finland.
6
Department of Pediatrics, Kuopio University Hospital, Kuopio, Finland.
7
Department of Pediatric and Adolescent Medicine, Orton Research Institute, Helsinki, Finland.
8
Clinica Pediatrica e Reumatologia, Paediatric Rheumatology International Trials Organisation (PRINTO), Istituto Giannina Gaslini, Via Gaslini 5, 16147, Genoa, Italy.
9
Dipartimento di Pediatria, Università di Genova, Genoa, Italy.
10
Clinica Pediatrica e Reumatologia, Paediatric Rheumatology International Trials Organisation (PRINTO), Istituto Giannina Gaslini, Via Gaslini 5, 16147, Genoa, Italy. nicolaruperto@gaslini.org.

Abstract

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Finnish language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 173 JIA patients (1.2% systemic, 46.2% oligoarticular, 39.9% RF-negative polyarthritis, 12.7% other categories) and 100 healthy children, were enrolled in five paediatric rheumatology centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Finnish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.

KEYWORDS:

Disease status; Functional ability; Health-related quality of life; JAMAR; Juvenile idiopathic arthritis

PMID:
29637332
PMCID:
PMC5893667
DOI:
10.1007/s00296-018-3950-3
[Indexed for MEDLINE]
Free PMC Article

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