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Rheumatol Int. 2018 Apr;38(Suppl 1):395-402. doi: 10.1007/s00296-018-3982-8. Epub 2018 Apr 7.

The Turkish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

Author information

1
Pediatric Rheumatology Unit, Antalya Life Hospital, Antalya, Turkey. erkandemirkaya@yahoo.com.
2
Western University Children's Hospital, London Health Sciences Centre, London, ON, Canada. erkandemirkaya@yahoo.com.
3
Department of Pediatric Rheumatology, Hacettepe University, Ankara, Turkey.
4
Department of Pediatric Rheumatology, Umraniye Training and Research Hospital, Health Sciences University, Istanbul, Turkey.
5
Pediatric Rheumatology, Kanuni Sultan Süleyman Education and Research Hospital, Istanbul, Turkey.
6
Department of Pediatric Rheumatology, Cerrahpasa Medical School, Istanbul University, Istanbul, Turkey.
7
Division of Pediatric Rheumatology, Department of Pediatrics, Dokuz Eylül University Medical Faculty, Balcova, Izmir, Turkey.
8
Gulhane School of Nursing, University of Health Sciences, Etlik, Ankara, Turkey.
9
Division of Pediatric Rheumatology, University of Health Sciences, Etlik, Ankara, Turkey.
10
Clinica Pediatrica e Reumatologia, Paediatric Rheumatology International Trials Organisation (PRINTO), Istituto Giannina Gaslini, Via Gaslini 5, 16147, Genova, Italy.
11
Dipartimento di Pediatria, Università di Genova, Genoa, Italy.
12
Clinica Pediatrica e Reumatologia, Paediatric Rheumatology International Trials Organisation (PRINTO), Istituto Giannina Gaslini, Via Gaslini 5, 16147, Genova, Italy. nicolaruperto@gaslini.org.

Abstract

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Turkish language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 466 JIA patients (13.7% systemic, 40.6% oligoarticular, 22.5% RF negative poly-arthritis, and 23.2% other categories) and 93 healthy children were enrolled in four centres. The JAMAR components discriminated well-healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Turkish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.

KEYWORDS:

Disease status; Functional ability; Health-related quality of life; JAMAR; Juvenile idiopathic arthritis

PMID:
29637329
PMCID:
PMC5893710
DOI:
10.1007/s00296-018-3982-8
[Indexed for MEDLINE]
Free PMC Article

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