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Rheumatol Int. 2018 Apr;38(Suppl 1):291-298. doi: 10.1007/s00296-018-3963-y. Epub 2018 Apr 7.

The Norwegian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

Author information

1
Department of Rheumatology and Medical Faculty, Oslo University Hospital and University of Oslo, Postboks 4950, Nydalen, 0424, Oslo, Norway. berit.flato@medisin.uio.no.
2
Norwegian National Advisory Unit on Rheumatic Diseases in Children and Adolescents, Oslo University Hospital, Oslo, Norway. berit.flato@medisin.uio.no.
3
Department of Clinical and Molecular Medicine, Faculty of Medicine and Health Sciences, NTNU - Norwegian University of Science and Technology, Trondheim, Norway.
4
Department of Pediatrics, St. Olavs University Hospital of Trondheim, Trondheim, Norway.
5
Department of Pediatrics, University Hospital of Northern Norway, Tromsö, Norway.
6
Department of Clinical Medicine, UiT The Arctic University of Norway, Tromsö, Norway.
7
Norwegian National Advisory Unit on Rheumatic Diseases in Children and Adolescents, Oslo University Hospital, Oslo, Norway.
8
Clinica Pediatrica e Reumatologia, Paediatric Rheumatology International Trials Organisation (PRINTO), Istituto Giannina Gaslini, Via Gaslini 5, 16147, Genoa, Italy.
9
Dipartimento di Pediatria, Università di Genova, Genoa, Italy.
10
Clinica Pediatrica e Reumatologia, Paediatric Rheumatology International Trials Organisation (PRINTO), Istituto Giannina Gaslini, Via Gaslini 5, 16147, Genoa, Italy. nicolaruperto@gaslini.org.

Abstract

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Norwegian language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic and clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 301 JIA patients (3.3% systemic, 41.2% oligoarticular, 25.9% RF negative polyarthritis, and 29.6% other categories) and 74 healthy children were enrolled in three centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Norwegian version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.

KEYWORDS:

Disease status; Functional ability; Health-related quality of life; JAMAR; Juvenile idiopathic arthritis

PMID:
29637327
PMCID:
PMC5893693
DOI:
10.1007/s00296-018-3963-y
[Indexed for MEDLINE]
Free PMC Article

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