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Trials. 2017 Nov 23;18(1):559. doi: 10.1186/s13063-017-2289-5.

Network methods to support user involvement in qualitative data analyses: an introduction to Participatory Theme Elicitation.

Author information

1
School of Social Sciences, Education and Social Work, Queen's University, Belfast, UK. p.best@qub.ac.uk.
2
UKCRC Centre of Excellence for Public Health Northern Ireland, Belfast, Northern Ireland. p.best@qub.ac.uk.
3
School of Medicine, Dentistry and Biomedical Sciences, Queen's University, Belfast, UK.
4
UKCRC Centre of Excellence for Public Health Northern Ireland, Belfast, Northern Ireland.

Abstract

BACKGROUND:

While Patient and Public Involvement (PPI) is encouraged throughout the research process, engagement is typically limited to intervention design and post-analysis stages. There are few approaches to participatory data analyses within complex health interventions.

METHODS:

Using qualitative data from a feasibility randomised controlled trial (RCT), this proof-of-concept study tests the value of a new approach to participatory data analysis called Participatory Theme Elicitation (PTE). Forty excerpts were given to eight members of a youth advisory PPI panel to sort into piles based on their perception of related thematic content. Using algorithms to detect communities in networks, excerpts were then assigned to a thematic cluster that combined the panel members' perspectives. Network analysis techniques were also used to identify key excerpts in each grouping that were then further explored qualitatively.

RESULTS:

While PTE analysis was, for the most part, consistent with the researcher-led analysis, young people also identified new emerging thematic content.

CONCLUSIONS:

PTE appears promising for encouraging user led identification of themes arising from qualitative data collected during complex interventions. Further work is required to validate and extend this method.

TRIAL REGISTRATION:

ClinicalTrials.gov, ID: NCT02455986 . Retrospectively Registered on 21 May 2015.

KEYWORDS:

Network analysis; Participatory analysis; Patient and public involvement; Trials; User involvement

PMID:
29169378
PMCID:
PMC5701364
DOI:
10.1186/s13063-017-2289-5
[Indexed for MEDLINE]
Free PMC Article

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