Format

Send to

Choose Destination
Semin Fetal Neonatal Med. 2018 Feb;23(1):44-51. doi: 10.1016/j.siny.2017.10.005. Epub 2017 Oct 27.

Improving neonatal care with the help of veteran resource parents: An overview of current practices.

Author information

1
Research Center and Unité de Recherche en Éthique Clinique et Partenariat Famille, CHU Sainte-Justine, Montréal, Canada.
2
Division of Neonatology, CHU Sainte-Justine, Québec, Canada.
3
Préma-Québec, Longueil, QC, Canada.
4
NICU, Sunnybrook, Toronto, Canada; Canadian Premature Babies Foundation, Toronto, Canada.
5
Research Center and Unité de Recherche en Éthique Clinique et Partenariat Famille, CHU Sainte-Justine, Montréal, Canada; Division of Neonatology, CHU Sainte-Justine, Québec, Canada; Clinical Ethics Unit and Palliative Care Unit, CHU Sainte-Justine, Montréal, Canada; Pediatrics, Clinical Ethics and Bureau de l'Éthique Clinique, Université de Montréal, Montréal, Canada. Electronic address: anniejanvier@hotmail.com.

Abstract

Over the past decade, veteran parents who have lived a neonatal intensive care unit (NICU) experience have become increasingly involved as 'resource parents' to provide peer-to-peer support to "new" NICU parents. These parents can provide a unique form of support to new parents. They can also assume other roles in clinical care, research, administration and/or teaching, but those roles are rarely described in the literature. This article reviews many of the activities performed by resource parents in neonatology. These activities were identified/examined and classified according to the location of involvement (hospital or not), the presence/absence of direct interaction with families and providers, and the topic of involvement. We have also identified gaps in knowledge relative to recruitment and training, development and evaluation of programs, structuring of responsibilities, and remuneration of resource parents. Future research is needed to measure the impact of resource parents on neonatal care.

KEYWORDS:

Family-centered care; Neonatal intensive care unit; Neonatology; Patient-centered research; Peer-to-peer support; Resource parents

PMID:
29111298
DOI:
10.1016/j.siny.2017.10.005
[Indexed for MEDLINE]

Supplemental Content

Full text links

Icon for Elsevier Science
Loading ...
Support Center