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Cureus. 2017 Aug 18;9(8):e1580. doi: 10.7759/cureus.1580.

Palliative Care Options for a Young Adult Patient with a Diffuse Intrinsic Pontine Glioma.

Author information

1
Robert Wood Johnson Medical School.
2
Children's Center for Cancer and Blood Diseases, Children's Hospital of Los Angeles.
3
Pathology and Laboratory Medicine, Children's Hospital of Los Angeles.
4
Clinical Social Work, Children's Hospital of Los Angeles.
5
Pathology and Laboratory Medicine, Children's Hospital of Los Angeles, Keck School of Medicine of the University of Southern California, Los Angeles, Ca.
6
Department of Neurosurgery, Children's Hospital of Los Angeles, Keck School of Medicine of the University of Southern California, Los Angeles, Ca.
7
Department of Radiation Oncology, Keck School of Medicine of the University of Southern California, Los Angeles, CA.

Abstract

Diffuse intrinsic pontine gliomas (DIPGs) are rare but devastating brain tumors that occur primarily in children. These gliomas have poor prognoses and present options focus on palliation of symptoms and prolongation of life. Here, we present a case of a 16-year-old female diagnosed with a DIPG whose age group has been mostly left out of discussions regarding psychosocial support options. This report is meant to start a conversation about the different support options available at our institution that have shown promising results in the literature for palliative care applications. These options can include camps for patients with brain tumors, psychological counseling, the Ronald McDonald House, and other psychosocial programs. Many of these programs can be tailored to meet the specific needs of adolescent and young adult (AYA) patientsĀ and will hopefully be integrated into a comprehensive palliative care regimen in future studies.

KEYWORDS:

adolescent; aya; dipg; end-of-life; palliative care; psychosocial; support; young adult

Conflict of interest statement

The authors have declared that no competing interests exist.

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