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World J Pediatr Congenit Heart Surg. 2017 Sep;8(5):597-599. doi: 10.1177/2150135117725458.

The World Database for Pediatric and Congenital Heart Surgery: The Dawn of a New Era of Global Communication and Quality Improvement in Congenital Heart Disease.

Author information

1
1 Department of Surgery, School of Medicine, University of Missouri-Kansas City, Kansas City, MO, USA.
2
2 Cardiovascular Surgery, Heart Institute of Japan, Tokyo Women's Medical University, Tokyo, Japan.
3
3 Children's National Medical Center, Washington, DC, USA.
4
4 Instituto de Cardiopatías Congénitas, Fundacion Cardioinfantil-IC, Bogota, Colombia.
5
5 Instituto Nacional de Cardiología "Ignacio Chávez", México.
6
6 Division of Pediatric Cardiovascular Surgery, The Montreal Children's Hospital of the McGill University Health Centre, Montreal, Quebec, Canada.
7
7 Division of Cardiovascular of Surgery, Johns Hopkins All Children's Heart Institute, Johns Hopkins All Children's Hospital and Florida Hospital for Children, John Hopkins University, Saint Petersburg, Tampa, and Orlando, FL, USA.
8
8 Department of Cardiovascular Surgery, Mt Fuji Shizuoka Children's Hospital, Japan.
9
9 Pediatric and Congenital Cardiac Surgical Unit-University of Padova Medical School, Padova, Italy.
10
10 University of Alabama at Birmingham, Birmingham, AL, USA.

Abstract

The World Society for Pediatric and Congenital Heart Surgery was founded with the mission to "promote the highest quality comprehensive cardiac care to all patients with congenital heart disease, from the fetus to the adult, regardless of the patient's economic means, with an emphasis on excellence in teaching, research, and community service." Early on, the Society's members realized that a crucial step in meeting this goal was to establish a global database that would collect vital information, allowing cardiac surgical centers worldwide to benchmark their outcomes and improve the quality of congenital heart disease care. With tireless efforts from all corners of the globe and utilizing the vast experience and invaluable input of multiple international experts, such a platform of global information exchange was created: The World Database for Pediatric and Congenital Heart Disease went live on January 1, 2017. This database has been thoughtfully designed to produce meaningful performance and quality analyses of surgical outcomes extending beyond immediate hospital survival, allowing capture of important morbidities and mortalities for up to 1 year postoperatively. In order to advance the societal mission, this quality improvement program is available free of charge to WSPCHS members. In establishing the World Database, the Society has taken an essential step to further the process of global improvement in care for children with congenital heart disease.

KEYWORDS:

congenital heart disease (CHD); congenital heart surgery; database (all types); international collaboration

PMID:
28901228
DOI:
10.1177/2150135117725458
[Indexed for MEDLINE]

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