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AMIA Jt Summits Transl Sci Proc. 2017 Jul 26;2017:302-307. eCollection 2017.

Evolving Research Data Sharing Networks to Clinical App Sharing Networks.

Author information

1
Massachussetts General Hospital, Boston, MA.
2
Harvard Medical School, Boston, MA.
3
Louisiana Public Health Institute, LA.
4
Research Action for Health Network, LA.
5
Children's Hospital Boston, Boston, MA.
6
Persistent Systems, India.

Abstract

Research networks for data sharing are growing into a large platform for pragmatic clinical trials to generate quality evidence for shared medical decision-making. Institutions partnering in the networks have made large investments in developing the infrastructure for sharing data. We investigate whether institutions partnering on Patient-Centered Outcomes Research Institute's (PCORI) network can share clinical apps. At two different sites, we imported patient data in PCORI's clinical data model (CDM) format into i2b2 repositories, and adapted the SMART-on-FHIR cell to perform CDM-to-FHIR translation, serving demographics, laboratory results and diagnoses. We performed manual validations and tested the platform using four apps from the SMART app gallery. Our study demonstrates an approach to extend the research infrastructure to allow the partnering institutions to run shared clinical apps, and highlights the involved challenges. Our results, tooling and publically accessible data service can potentially transform research networks into clinical app sharing networks and pave the way towards a learning health system.

PMID:
28815145
PMCID:
PMC5543356

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