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J Geriatr Psychiatry Neurol. 2017 Sep;30(5):235-252. doi: 10.1177/0891988717720302. Epub 2017 Jul 26.

Caregiver Burden in Parkinson Disease: A Critical Review of Recent Literature.

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1 Systems Neuroscience Group, QIMR Berghofer Medical Research Institute, Herston, Queensland, Australia.
2 Neurosciences Queensland, St Andrew's War Memorial Hospital, Spring Hill, Queensland, Australia.
3 Queensland Brain Institute, University of Queensland, St Lucia, Queensland, Australia.
4 School of Medicine, University of Queensland, Herston, Queensland, Australia.
5 UQ Centre for Clinical Research, University of Queensland, Herston, Queensland, Australia.
6 School of Psychology, University of Queensland, St Lucia, Queensland, Australia.
7 Department of Neurology, Royal Brisbane & Woman's Hospital, Herston, Queensland, Australia.


Burden is a negative psychological state induced in caregivers by the demands of providing care to a person with an illness or a disability. Managing caregiver burden in Parkinson disease (PD) is significant because informal caregivers make a substantial contribution to the well-being of persons with PD, incurring financial, social, and personal losses. Failure to recognize and manage caregiver burden may lead to burnout and premature institutionalization of the person with PD. We conducted a comprehensive literature review to identify and summarize factors that may amplify burden, including motor and nonmotor symptoms of PD, caregiver psychiatric symptoms, and caregiver coping style. We review instruments designed to sample the construct of burden among caregivers and evaluate interventions that may reduce burden, either by directly targeting caregivers or by treating PD symptoms associated with burden. We aim to provide a concise synopsis of these issues for the clinician or researcher working with this population in order to facilitate recognition of caregiver burden, provide accurate assessment, administer appropriate interventions, and stimulate further research in this area.


Parkinson disease; burden; caregiver; carer; strain

[Indexed for MEDLINE]

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