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Patient. 2017 Oct;10(5):541-544. doi: 10.1007/s40271-017-0257-5.

Inaugural Conference on Incorporating Patient-Reported Outcomes and Patient Preference Information into Clinical Research, Clinical Care, and Risk-Benefit Assessments for Neurodegenerative Diseases.

Author information

1
Huntington Disease Care, Education and Research Center, Georgetown University, 2115 Wisconsin Ave., NW, Suite 120, Washington, DC, 20007, USA. jlp92@georgetown.edu.
2
Program for Regulatory Science and Medicine, Georgetown University, 2115 Wisconsin Ave., NW, Suite 603, Washington, DC, 20007, USA.
3
, Philadelphia, PA, 19146, USA.
4
Center for Human Experimental Therapeutics, University of Rochester Medical Center, 265 Crittenden Blvd, Mail Stop CU 420694, Rochester, NY, 14642, USA.
5
Center for Biologics Evaluation and Research, Office of Biostatistics and Epidemiology, U.S. Food and Drug Administration, 10903 New Hampshire Ave, Silver Spring, MD, 20993, USA.
6
Galica Healthcare, 373 Bay Village Drive, Rochester, NY, 14609, USA.
7
Huntington Disease Care, Education and Research Center, Georgetown University, 2115 Wisconsin Ave., NW, Suite 120, Washington, DC, 20007, USA.
8
Voyager Therapeutics Inc., 75 Sidney Street, Cambridge, MA, 02139, USA.
9
Department of Neurology, Northwestern University Feinberg School of Medicine, 710 North Lake Shore Drive, 1126, Chicago, IL, 60611, USA.
10
Sterling Health IT, 42950 Tara Court, Ashburn, VA, 20147, USA.
11
Banner Alzheimer's Institute, Banner Health, Phoenix, AZ, 85006, USA.
12
, 3800 Reservoir Road, 7PHC, Washington, DC, 20007, USA.
PMID:
28688021
PMCID:
PMC5605607
DOI:
10.1007/s40271-017-0257-5
[Indexed for MEDLINE]
Free PMC Article

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