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Qual Life Res. 2017 Jun 22. doi: 10.1007/s11136-017-1629-y. [Epub ahead of print]

Children's family experiences: development of the PROMIS® pediatric family relationships measures.

Author information

1
Temple University College of Public Health, 1700 N Broad St, 301-H, Philadelphia, PA, 19121, USA. katherine.bevans@temple.edu.
2
Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.
3
HealthAct, Boston, MA, USA.
4
Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.
5
The Children's Hospital of Philadelphia, Philadelphia, PA, USA.
6
University of Illinois at Urbana-Champaign, Champaign, IL, USA.
7
National Jewish Health, Denver, CO, USA.
8
Booz, Allen, Hamilton, Mclean, VA, USA.
9
Johns Hopkins University, Baltimore, MD, USA.
10
University of Pennsylvania Perelman School of Medicine, Philadelphia, PA, USA.

Abstract

PURPOSE:

To describe the development of pediatric family relationships measures, with versions for child self-report (8-17 years) and parent-report for children 5-17 years old. Measures were created for integration into the Patient Reported Outcomes Measurement Information System (PROMIS®).

METHODS:

Semi-structured interviews with 10 experts, 24 children, and 8 parents were conducted to elicit and clarify essential elements of family relationships. A systematic literature review was conducted to identify item concepts representative of each element. The concepts were transformed into items that were iteratively revised based on cognitive interviews (n = 43 children) and item translatability review. Psychometric studies involving 2846 children and 2262 parents were conducted to further refine and validate the instruments.

RESULTS:

Qualitative procedures supported the development of content valid Family Relationships item banks. Final child- and parent-report item banks each contain 47 items. Unidimensional item banks were calibrated using IRT-modeling to estimate item parameters representative of the US population and to enable computerized adaptive test administration. Four- and eight-item short forms were constructed for standard fixed format administration. All instruments have strong internal consistency, retest-reliability, and provide precise estimates of various levels of family relationship quality. Preliminary evidence of the instruments' validity was provided by known-group comparisons and convergence with legacy measures.

CONCLUSION:

The PROMIS pediatric Family Relationships measures can be applied in research focused on determinants, outcomes, and the protective effects of children's subjective family relationship experiences.

KEYWORDS:

Child; Child-report; Family belonging; Family interactions; Family relationships; Parent-report; Social health

PMID:
28643117
DOI:
10.1007/s11136-017-1629-y
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