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Clin Rehabil. 2017 Jul;31(7):948-956. doi: 10.1177/0269215517709330.

A study of burden of care and its correlates among family members supporting relatives and loved ones with traumatic spinal cord injuries.

Author information

1
1 Department of Psychiatry, University Hospital Vall d'Hebron, Autonomous University of Barcelona, Barcelona, Spain.
2
2 Vall d'Hebron Research Institute, Barcelona, Spain.

Abstract

OBJECTIVE:

To understand and describe in a sample of caregivers of persons with spinal cord injury, their burden of care, resilience and life satisfaction and to explore the relationship between these variables.

DESIGN:

Cross-sectional design.

SETTING:

One Spinal Cord Injury Acute Inpatient Unit from a general hospital.

SUBJECTS:

Seventy-five relatives of persons with spinal cord injuries (84% women) with a mean age of 48.55 ( SD = 12.55) years.

INTERVENTIONS:

None.

MEASURES:

Demographics (neurological loss and severity according to the American Spinal Injury Association criteria), the Zarit Burden Interview, the Resilience Scale and the Life Satisfaction Checklist.

RESULTS:

All caregivers experienced feelings of different intensities of burden (52% mild-to-moderate, 43% moderate-to-severe and 5% severe), and none of them expressed little or no burden at the assessment moment. Caregivers' main worries were "dependence" and "the future of the injured." Resilience was medium-to-high (mean = 141.93, SD = 23.44) for the whole sample with just a minority of them revealing low (15%) or very low resilience (7%). The highest scores were obtained in relation to "caregivers' independence" and "meaning of their lives." Life satisfaction scores were medium-to-high (mean = 36.6, SD = 6). These scores were not related to demographics or the severity of the injury. Zarit Burden Interview scores were negatively correlated to Resilience Scale ( r = -.370, P = .001) and Life Satisfaction Checklist scores ( r = -.412, P < .001).

CONCLUSION:

More resilient and satisfied caregivers experienced lower burden. Burden is moderate-to-high and mainly related to uncertainty about the future, caregivers' insecurity with caregiving and dependence of the injured.

KEYWORDS:

Spinal cord injury; burden of care; caregivers; life satisfaction; resilience

PMID:
28637391
DOI:
10.1177/0269215517709330
[Indexed for MEDLINE]

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