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Health Qual Life Outcomes. 2017 May 12;15(1):99. doi: 10.1186/s12955-017-0672-2.

Domains of quality of life freely expressed by cancer patients and their caregivers: contribution of the SEIQoL.

Author information

1
EA3279, Self-perceived Health Assessment Research Unit, Aix Marseille Université, 27 bd Jean Moulin, Marseille, cedex 05, F-13385, France.
2
National Clinical research Quality of Life in Oncology Platform, Nancy, France.
3
EA3279, Self-perceived Health Assessment Research Unit, Aix Marseille Université, 27 bd Jean Moulin, Marseille, cedex 05, F-13385, France. karine.baumstarck@univ-amu.fr.
4
Department of Neuro-Oncology, Assistance Publique Hôpitaux de Marseille, Timone Hospital, 13005, Marseille, France.
5
Assistance Publique Hôpitaux de Marseille, Multidisciplinary Oncology and Therapeutic Innovations Department, Aix Marseille University, Centre d'Investigation Clinique, 13385, Marseille, France.
6
Department of adult oncology, Assistance Publique Hôpitaux de Marseille, Timone Hospital, 13005 Marseille, and CRO2, Aix Marseille Université, 13284, Marseille, France.
7
Université Lumière Lyon 2, Social Psychology Research Group (GRePS EA 4163), Bron, France.

Abstract

BACKGROUND:

The purposes of this study, performed on a large sample of cancer patient-caregiver dyads, were: i) to simultaneously investigate, using an individualized quality of life (QoL) measure (Schedule for the Evaluation of Individual QoL, SEIQoL), the QoL domains freely expressed by cancer patients and their caregivers, and ii) to explore overlapping between the SEIQoL assessment and QoL assessment using traditional instruments.

METHODS:

The study employed a cross-sectional design including cancer patients who were going to receive chemotherapy treatment and their caregivers. Quality of life was assessed using condition-specific questionnaires (EORTC QLQ-C30 and CarGOQoL), generic health-related questionnaire (SF-36), and open individualized measure (SEIQoL).

RESULTS:

The final sample included 205 patient-caregiver dyads. From the SEIQoL, Family, Health, and Leisures were the most freely expressed QoL domains by patients and caregivers, but reported with different weights. Love life and financial issues were less spontaneously mentioned. The SEIQoL index was moderately correlated to the condition-specific QoL questionnaires (R lower than |0.40|) and to SF-36 (correlation coefficients: R ranging from 0.17 to 0.31).

CONCLUSION:

Individualized QoL measures allow individuals to spontaneously express important, non-predefined domains. This study highlights the need to explore QoL using a combination of individualized questionnaires and standardized questionnaires, capturing complementary facets that patients consider important in their life.

PMID:
28494773
PMCID:
PMC5427569
DOI:
10.1186/s12955-017-0672-2
[Indexed for MEDLINE]
Free PMC Article

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