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Soc Sci Med. 2017 Jun;183:142-150. doi: 10.1016/j.socscimed.2017.04.043. Epub 2017 Apr 27.

Contextualising renal patient routines: Everyday space-time contexts, health service access, and wellbeing.

Author information

1
Center for Tobacco Control Research and Education, Cardiovascular Research Institute, University of California, San Francisco, USA; School for Physical, Environmental, and Mathematical Sciences, University of New South Wales, Canberra, Australia. Electronic address: Julia.mcquoid@ucsf.edu.
2
Centre for Medical and Health Sciences Education, The University of Auckland, New Zealand. Electronic address: T.jowsey@auckland.ac.nz.
3
Director, Renal Services, ACT Health, ACT, Australia; Associate Prof of Nephrology, Australian National University (ANU) Medical School, Australia. Electronic address: girish.talaulikar@act.gov.au.

Abstract

Stable routines are key to successful illness self-management for the growing number of people living with chronic illness around the world. Yet, the influence of chronically ill individuals' everyday contexts in supporting routines is poorly understood. This paper takes a space-time geographical approach to explore the everyday space-time contexts and routines of individuals with chronic kidney disease (CKD). We ask: what is the relationship between renal patients' space-time contexts and their ability to establish and maintain stable routines, and, what role does health service access play in this regard? We draw from a qualitative case study of 26 individuals with CKD in Australia. Data comprised self-reported two day participant diaries and semi-structured interviews. Thematic analysis of interview transcripts was guided by an inductive-deductive approach. We examined the embeddedness of routines within the space-time contexts of participants' everyday lives. We found that participants' everyday space-time contexts were highly complex, especially for those receiving dialysis and/or employed, making routines difficult to establish and vulnerable to disruption. Health service access helped shape participants' everyday space-time contexts, meaning that incidences of unpredictability in accessing health services set-off 'ripple effects' within participants' space-time contexts, disrupting routines and making everyday life negotiation more difficult. The ability to absorb ripple effects from unpredictable health services without disrupting routines varied by space-time context. Implications of these findings for the deployment of the concept of routine in health research, the framing of patient success in self-managing illness, and health services design are discussed. In conclusion, efforts to understand and support individuals in establishing and maintaining routines that support health and wellbeing can benefit from approaches that contextualise and de-centre everyday human behaviour. Opportunities to support renal patients in managing illness and experiencing wellbeing outside the clinical setting lie in a space-time re-design of chronic care services.

KEYWORDS:

Chronic kidney disease; Dialysis; Everyday context; Health services; Routine; Self-management; Space; Time

PMID:
28482275
PMCID:
PMC5512548
DOI:
10.1016/j.socscimed.2017.04.043
[Indexed for MEDLINE]
Free PMC Article

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