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J Pediatr Psychol. 2017 Oct 1;42(9):970-982. doi: 10.1093/jpepsy/jsx076.

Health Care Transition for Young Adults With Type 1 Diabetes: Stakeholder Engagement for Defining Optimal Outcomes.

Author information

1
Nemours Children's Health System.
2
College of Nursing, University of Central Florida.
3
College of Medicine, University of Cincinnati.

Abstract

Objectives:

Research on the transition to adult care for young adults with type 1 diabetes (T1D) emphasizes transition readiness, with less emphasis on transition outcomes. The relatively few studies that focus on outcomes use a wide variety of measures with little reliance on stakeholder engagement for measure selection.

Methods:

This study engaged multiple stakeholders (i.e., young adults with T1D, parents, pediatric and adult health care providers, and experts) in qualitative interviews to identify the content domain for developing a multidimensional measure of health care transition (HCT) outcomes.

Results:

The following constructs were identified for a planned measure of HCT outcomes: biomedical markers of T1D control; T1D knowledge/skills; navigation of a new health care system; integration of T1D into emerging adult roles; balance of parental involvement with autonomy; and "ownership" of T1D self-management.

Discussion:

The results can guide creation of an initial item pool for a multidimensional profile of HCT outcomes.

KEYWORDS:

health care transition; transition outcomes; type 1 diabetes; young adulthood

PMID:
28460055
DOI:
10.1093/jpepsy/jsx076
[Indexed for MEDLINE]

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